Information and resources for
Virginia's disability community
Editor’s Note:
The resources on these pages are for informational purposes only. Inclusion does not indicate an endorsement by Celebrating Special Children (CSC). Likewise, omission of a program does not indicate disapproval of that program. CSC makes no judgment on the standards of operations of services that are listed in these pages.
We make every effort to place the various resource organizations into appropriate categories, knowing full well that many conditions may cross several category boundaries. We ask your indulgence for the resources being placed as they are. We welcome your input as resources are updated, and request your patience, as this is a time-consuming process.
If you know of a resource that I have missed, please use the CONTACT US page to give me the details.
Thank you!
Laura
LAST UPDATED May 22, 2013
Additional note: All phone numbers beginning with 800, 866, 877 and 888 are toll-free.
CONDITION-SPECIFIC RESOURCES
Asthma and Allergies
Airborne Illnesses/Diseases Web Page
Section of commercial website with useful links regarding airborne illnesses.
http://atlantaaccompanies.com/info/airborne-illness-and-disease
Allergy & Asthma Network Mothers of Asthmatics
Provides information about asthma and allergy including asthma medications, doctor referrals, information about local support groups.
800-878-4403.
www.aanma.org
Allergy Resources for School Nurses
This page on a commercial website has many useful links regarding kids and allergies and so is posted here.
www.pulseuniform.com/allergy-resources.asp
American Academy of Allergy, Asthma & Immunology
Provides information for parents and professionals including a referral source for allergists in Virginia.
414-272-6071.
www.aaaai.org
American Lung Association of Virginia
Volunteer health organization working to save lives, improve lung health and prevent lung disease. Special interests include asthma, tobacco control, and environmental health.
804-955-4910
Abingdon • 276-628-1277
Norfolk • 757-855-3059
Waynesboro • 540-946-8023
www.lungusa.org/virginia
Asthma and Allergy Foundation of America
Provides practical information, community-based services, support and referrals through a national network of chapters.
800-7-ASTHMA.
www.aafa.org
Better Breathers Club
Program of American Lung Association of Virginia that provides an opportunity for persons with respiratory difficulty to learn more about lung disease and to share with others who are also coping with breathing problems.
Fredericksburg ~ 540-741-1447
Galax ~ 276-236-1746
Mechanicsville ~ 804-764-7632
Norfolk ~ 757-286-6996
Petersburg ~ 804-504-8100 ext 2084
Roanoke ~Call 540-266-6000 or 1-800-422-8482 to register for attendance and any further information, i.e. room changes, cancellation.
Suffolk ~ 757-934-4263
Virginia Beach ~ 757-641-9353
www.lung.org/lung-disease/copd/connect-with-others/better-breathers-clubs/virginia.html?page=2
Center for Food Safety and Applied Nutrition
A program of the Food and Drug Administration that words to protect the public's health by ensuring that the nation's food supply is safe, sanitary, wholesome, and honestly labeled, and that cosmetic products are safe and properly labeled.
888-723-3366.
www.fda.gov/AboutFDA/CentersOffices/OfficeofFoods/CFSAN/default.htm
Food Allergy & Anaphylaxis Network
Dedicated to increasing public awareness of, providing education about, and advancing scientific research on, food allergies and anaphylaxis. Sign up for “allergy alerts” which are mailed to you when an allergen is found in food and not listed in the ingredients.
800-929-4040.
www.foodallergy.org
Food Allergy Information
Page of The American College of Allergy, Asthma and Immunology, which discusses the various types of food allergies and their triggers.
www.acaai.org/allergist/allergies/Types/food-allergies/Pages/default.aspx
Guide to Airborne Allergies and Asthma Allergies
Editor's note: This is a commercial site but has very useful information about airborne allergies.
www.serenataflowers.com/Guide-to-Airborne-Allergies-and-Asthma
Kids With Food Allergies Foundation
Mission is to help families keep children with food allergies safe and healthy. One of the unique ways KFA provides that help is through an online forum community.
community.kidswithfoodallergies.org
National Allergy Bureau
The section of the American Academy of Allergy, Asthma and Immunology's (AAAAI) Aeroallergen Network that is responsible for reporting current pollen and mold spore levels to the public.
pollen.aaaai.org/nab/index.cfm
Auditory Processing Disorder (aka Central Auditory Processing Disorder)
ADHD Information Library/Auditory Processing Disorder
Prortion of website deadling with APD.
newideas.net/auditory-processing-disorder
Integrated Listening Systems (iLs)
A commercial site, this has very interesting and useful information. iLs is a multi-sensory program for improving brain function. It is an enjoyable activity, or “exercise,” which can be customized for all ages and skill levels for implementation in clinic, school or home.
www.integratedlistening.com
Listen-Up.org
Informational pages which are no longer being updated and are for informational purposes only.
www.listen-up.org/edu/capd.htm
National Coalition of Auditory Processing Disorders
Website with information about Auditory Processsing Disorder (APD), a neurological defect that affects how the brain processes spoken language. This makes it difficult for the child to process verbal instructions or even to filter out background noise in the classroom.
www.ncapd.org
The National Institute on Deafness and Other Communication Disorders (NIDCD)
Conducts and supports research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. Search for service providers on this site.
800-241-1044
800-241-1055 TTY
www.nidcd.nih.gov/directory
Autism Spectrum
Autism Advocacy Coalition of Virginia
Membership based organization which provides support to families of individuals of all ages with autism in the state of Virginia. Provide workshops for families.
www.aac-va.org
Autism Center Registry of Virginia
Support group and registry for affected families to help track the progression, treatment and possible cures. By participating in these studies, families and children enrolled in the Registry have the opportunity to share their experience with autism and to contribute to solving the autism puzzle.
866-628-2268
autismlink.com/listing/autism_center_of_virginia_registry
Autism Consulting and Therapy, LLC
Provides Applied Behavior Analysis (ABA) services to children with Autism Spectrum Disorders and other developmental disabilities, specializing in In-Home therapy. Goal is to teach parents and siblings how to apply the techniques of ABA throughout the entire day--not just during the therapy session.
Virginia Beach
757-639-2218
www.hr-act.com
Autism Key
A resource tool, run by parents, for parents of children with autism and autism spectrum disorders. Message Boards share information about different forms of treatment, physicians, and overall experiences. Links to national resources.
www.autismkey.com
Autism Online
Connecting resources and community.
www.autismonline.org
Autism-PDD Resources Network
Support to cope with Autism spectrum disorders.
www.autism-pdd.net
The Autism Research Institute (ARI)
Desseminates research findings to parents and others worldwide who are seeking help. The ARI data bank contains over 40,000 detailed case histories of autistic children from over 60 countries. Website has many links to support and resources.
www.autism.com
AutismSafety.org
Portion of the National Autism website devoted to safety issues for children with autism.
www.autismsafety.org
Autism Speaks
Dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
www.autismspeaks.org
Autism Society of America
Promotes lifelong access and opportunities for persons within the autism spectrum and their families to be fully included, participating members of their communities.
800-3AUTISM
Central Virginia Chapter • Richmond • 804-257-0192 • www.asacv.org
Northern Virginia Chapter • 703-495-8444 • www.asanv.org
Peninsula Chapter • 757-565-6367 • www.peninsulautism.org
Tidewater Chapter • Norfolk • 757-461-4474 • www.tidewaterasa.org
www.Autism-Society.org
Autism Support Group
The Arc of Greater Prince William facilitates an Autism Parent Support Group that meets on the 4th Tuesday of each month from 7-9 PM. This parent-run group offers support, education, and social opportunities for families who have children (of any age) on the Autism spectrum. Child care is available. Call our main office or email for more information.
703-730-3124
www.arcgpw.org
Commonwealth Autism Service
Provides leadership in the implementation of a statewide system of services to maximize the potential and quality of life for Virginians with autism in partnership with the lead state agency for autism, the Department of Behavioral Health and Developmental Services (DBHDS).
800-649-8481
www.autismva.org
Dower and Associates, Inc.
A multi – disciplinary private practice with a focus in speech/language, education and behavior analysis. Current staff of speech/language pathologists, behavior technicians and tutors provide services (e.g., evaluations, therapy, tutoring, training, functional behavior assessments) and consultations to children in a variety of settings, (i.e., clinic, office, private and public schools)
Aldie, Leesburg, Manassas
703-618-6180
www.dowerandassociates.com
The Mea'Alofa Autism Support Center
Provides quality and empirically validated services to children with autism spectrum disorders (ASD) in a clinical setting.
757-465-3933
www.learnwithmasc.org/index.html
National Autism Association
Education, advocacy, awareness and support.
877-622-2884
www.nationalautismassociation.org
OASIS @ MAAP
Website provides articles, educational resources, links to local, national and international support groups, sources of professional help, lists of camps and schools, conference information, recommended reading, and moderated support message boards.
aspergersyndrome.org
Organization for Autism Research
Provides support and funds studies that provide practical information on lifelong care.
www.researchautism.org
Parents Of Autistic Children
Mission is to improve the lives of children and adults with autism by providing scientifically-based training to parents, teachers, and other direct service providers.
888-460-7622
www.poac.net
Parents Of Autistic Children of Northern Virginia
Serves as a clearinghouse for research-based methodologies for instructing students on the autism spectrum. Also trains public and private school educators and parents in ABA/VB and other research-based instructional methodologies. Also holds a monthly parent support group and information meeting.
703-391-2251
www.poac-nova.org
Sensory Processing Disorder Network
Website provides resources for individuals with SPD issues and for the family members, friends, therapists, physicians, teachers, and researchers.
303-794-1182
www.spdnetwork.org
Sensory Processing Disorder Resource Center
Updates on the latest Sensory Processing Disorder/Sensory Integration information.
www.sensory-processing-disorder.com
Special Needs Toys
Commerical website offering a range of Special Needs Toys, from mobile Multi-Sensory, to Swings, Trampolines and other Sensory Integration kits, Switches, Rewards and small Sensory toys.
www.specialneedstoys.com
Shenandoah Valley Autism Partnership
Offers support, networking and training for families and professionals who care for individuals with Autism Spectrum Disorder in the Shenandoah Valley.
www.valleyautism.org
Talk Autism
A communication service shared by many organizations to access a common database of resource directories, distance learning library, and special message boards.
www.talkautism.org
US Autism and Asperger Association
Provides education, research, support and solutions through conferences, newsletters, and resources.
888-9AUTISM
www.usautism.org
Virginia Autism Council
A state-supported council of autism experts seeking to define needed skill competencies, and to advance higher education, training and educational opportunities for personnel and caregivers supporting individuals with autism.
www.autismtrainingva.org
Virginia Autism Resource Center
Affiliated with Virginia Commonwealth University, provides training, consultation and information to parents and professionals who work with persons who have autism.
877-667-7771
www.varc.org
Blind, Partially Sighted - See also Deaf/Blind
American Council of the Blind
Information and referrals, including legal rights for blind and visually impaired persons. Literature includes the “Braille Forum,” topical brochures in large print and catalogs of useful products.
800-424-8666
202-467-5081
www.acb.org
American Foundation for the Blind
Promotes wide-ranging, systemic change by addressing the most critical issues facing the growing blind and visually impaired population— employment, independent living, literacy, and technology.
800-AFB-LINE (232-5463)
www.afb.org
Association for the Education & Rehabilitation of the Blind & Visually Impaired (AER)
Support professionals who provide education and rehabilitation services to people with visual impairments, offering professional development opportunities, publications, and public advocacy.
703-671-4500
www.aerbvi.org
Columbia Lighthouse for the Blind
Programs and services include early intervention services, training and consultation in assistive technology, career placement services, comprehensive low vision care and rehabilitation services.
202-454-6400
www.clb.org
FamilyConnect
Find videos, personal stories, events, news, and an online community that can offer tips and support from other parents of children who are blind or visually impaired.
www.familyconnect.org/parentsitehome.asp
Foundation Fighting Blindness
Provides information and referral services for affected individuals, families and eye care professionals.
800-683-5555
800-683-5551 TDD
Central Virginia Chapter • 804-769-2260
Northern Virginia Chapter • 703-707-1992
www.blindness.org
Learning Ally (formerly Recording for the Blind & Dyslexic)
Collection of more than 65,000 digitally recorded textbooks and literature titles – downloadable and accessible on mainstream as well as specialized assistive technology devices – is the largest of its kind in the world. More than 6,000 volunteers across the U.S. help to record and process the educational materials, which students rely on to achieve academic and professional success.
www.learningally.org
National Alliance for the Visually Handicapped (NAVH)
Lighthouse International has acquired NAVH. Dedicated to dedicated to fighting vision loss through prevention, treatment and empowerment.
800-829-0500
lighthouse.org/navh
National Braille Press
Promotes the literacy of blind children through braille and provides access to information that empowers blind people to actively engage in work, family, and community affairs.
888-965-8965
www.nbp.org
National Federation of the Blind, Virginia
Provides advocacy, community education and awareness, and mutual support for the blind.
Headquarters • 703-319-9226
Blue Ridge Chapter • 434-293-3556
Chesapeake Bay Chapter • 757-431-1205 • www.chesbayftblind.org
Eastern Shore Chapter • rjbfreetofly@gmail.com
Fairfax Chapter • 703-994-2040
Fredericksburg Area Chapter • 540-760-3885
Greater Springfield Chapter • 703-971-0745
Greater Warrenton Chapter • 540-341-7084
Greater Williamsburg Chapter • 757-565-1185
Peninsula Chapter • 757-594-6111
Potomac Chapter • 703-635-2085
Prince William Chapter • 703-730-1716
Richmond Chapter • 804-241-5010
Staunton Chapter • 540-525-7546
Tidewater Chapter • 757-622-2797
Winchester Chapter • 540-662-5011
www.nfbv.org
Prevent Blindness Mid-Atlantic
Programs and services to both children and adults with the emphasis on early detection and early prevention.
888-790-2020
www.theeyesite.org
Recording for the Blind & Dyslexic - SEE LEARNING ALLY
Works with leading publishers and technology innovators to bring accessible materials to individuals with visual and learning disabilities. RFB&D textbooks are available in every grade level and most subjects.
800-221-4792
434-326-4956
www.rfbd.org
Virginia Association of the Blind, Inc.
Local affiliate of The American Council of the Blind
800-426-2144
www.acb.org/affiliates/index.html
Virginia Association for Parents of Children with Visual Impairments (NAPVI)
Provides support to families, professionals, and the community to meet the needs of children who are blind or visually impaired, including those with multiple
disabilities.
804-938-1624
www.vaapvi.org
Virginia Department for the Blind and Vision Impaired
Dedicated to enabling people who are blind or have low vision to achieve maximum level of employment, education, and personal independence. Provides an array of specialized services to blind Virginians of all ages.
800-622-2155
804-371-3140 V/TTY
Bristol Regional Office • 276-642-7300 V/TTY
Fairfax Regional Office • 703-359-1100 V/TTY
Norfolk Regional Office • 757-466-4162 • 455-0144TTY
Richmond Regional Office • 804-371-3353 V/TTY
Roanoke Regional Office • 540-561-7475
Staunton Regional Office • 540-332-7729 V/TTY
www.vdbvi.org
Virginia School for the Deaf and the Blind
Provide an environment which fosters self-confident students who are contributing citizens and life-long learners and to be a resource of excellence for the communities of Virginia who serve students with deafness and or blindness.
vsdb.k12.va.us
Cancer
Alliance for Childhood Cancer
Provides a forum for national patient advocacy groups and medical and scientific organizations
571-483-1647
www.allianceforchildhoodcancer.org
The American Cancer Society
National, community-based health organization dedicated to eliminating cancer through research, education, advocacy, and service.
800-227-2345
www.cancer.org
American Childhood Cancer Organization
Network of support groups. Services provided by local groups include meetings, speakers, parent-to-parent visitation, summer camps, transportation, emergency funding, and publications.
855-858-2226
www.acco.org
CancerCare
Provides free professional support services to those affected by cancer including counseling, education, financial assistance and practical help.
800-813-HOPE (4673)
www.cancercare.org
The National Cancer Institute (NCI)
Coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
800-4-CANCER (800-422-6237)
www.cancer.gov
Lance Armstrong Foundation
Provides practical information, tools and support for people with cancer and their families and caregivers.
877-236-8820
www.livestrong.org
National Children’s Cancer Society
Works to improve the quality of life for children with cancer and to reduce the risk of cancer by promoting children’s health through financial and in-kind assistance, advocacy, support services, education and prevention programs.
www.nationalchildrenscancersociety.com
Ronald McDonald House
Offers a home-away-from-home for families of seriously ill children and who live too far away from the hospital to go home each night.
Charlottesville • 434-295-1885
Fairfax • 703-698-7080
Norfolk • 757-627-5386
Roanoke • 540-857-0770 • www.roanokeronaldmcdonald.com
Richmond • 804-355-6517 • rmhc-richmond.org
www.rmhc.com
Teens Living with Cancer
A site for teens with cancer. Includes information, personal stories and ways to connect with other kids with cancer.
www.teenslivingwithcancer.org
Cerebral Palsy (CP)
American Academy for Cerebral Palsy and Developmental Medicine
A multidisciplinary scientific society devoted to the study of cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
www.aacpdm.org
Ataxic Cerebral Palsy Help
Law firm website designed as an information resource to raise awareness of Ataxic Cerebral Palsy, including symptoms, causes, and treatment.
ataxiccerebralpalsyhelp.com
Cerebral Palsy of Virginia
Serves children and adults with cerebral palsy and other developmental disabilities such as Down syndrome, autism,muscular dystrophy, mental retardation, learning disabilities as well as hearing, speech and visual impairments.
757-497-7474
www.cerebralpalsyofvirginia.org
MyChild
Provides a wealth of knowledge to help with the difficulties of caring for children with Cerebral Palsy, neuological disorders or other special needs.
www.cerebralpalsy.org
TheraSuit Method
A commerical site for TheraSuit, which is a soft flexible therapy suit for persons with Cerebral Palsy and other neuro-developmental disorders. Combined with physical movement (therapy) the skills practiced will become more fluent and require less and less effort. Therefore, TheraSuit facilitates the development of new gross and fine motor skills like sitting, standing, walking.
www.suittherapy.com
United Cerebral Palsy
Member of national organization which strives to ensure the inclusion of persons with disabilities in every facet of society.
800-872-5827
www.ucp.org
Conduct/ Behavior Conditions
Association for Positive Behavior Support (APBS)
An international organization dedicated to promoting research-based strategies that combine applied behavior analysis and biomedical science with person-centered values and systems change to increase quality of life and decrease problem behaviors. The Association is made up of professionals, family members, trainers, consumers, researchers, and administrators who are involved and interested in positive behavior support.
www.apbs.org
Behavioradvisor.com
Website offers tips on managing behavior, and provides step-by-step directions for implementing many standard interventions.
www.Behavioradvisor.com
ConductDisorders.com
Online information and support for families with children who have conduct disorders such as Oppositional Defiance disorder (ODD) or Obsessive-Compulsive Disorder (OCD) or other diagnoses, but all of whom are oppositional and resistant to parenting.
www.conductdisorders.com
National Technical Assistance Center on Positive Behavioral Interventions and Supports (PBIS)
Established to address the behavioral and discipline systems needed for successful learning and social development of students. Provides capacity-building information and technical support about behavioral systems to assist states and districts in the design of effective schools. can search for Virginia contacts on this site.
www.pbis.org
Obsessive-Compulsive Foundation
Educates the public and professional communities about OCD and related disorders; provides assistance to affected individuals, their families and friends; and supports research to identify causes and effective treatments of OCD and related disorders.
www.ocfoundation.org
OCD Mid-Atlantic
Non-profit affiliate of the International OCD Foundation (IOCDF), locally based group made up of people with Obsessive Compulsive Disorder (OCD) and related disorders, as well as their families, friends, professionals and others.
www.ocfoundation.org/affiliates/mid-atlantic
Craniofacial Disorders
AboutFace USA
Provides information, support, and educational programs to individuals who have a facial disfigurement, and their families. Includes information and support for new parents.
800-665-FACE
www.aboutfaceusa.org
American Cleft Palate-Craniofacial Association (ACPA)
International non-profit medical society of health care professionals who treat and/or perform research on birth defects of the head and face.
www.acpa-cpf.org
AmeriFace
Services include referrals to qualified cleft/craniofacial teams, access to educational materials about these medical conditions, emotional support for affected individuals and their families, a campaign to promote general public awareness about facial differences and the networking of individuals and families for support purposes.
888-486-1209
www.ameriface.org
Children’s Craniofacial Association (CCA)
Works to promotes public awareness of craniofacial conditions and social acceptance of individuals with facial disfigurement. Website has information about many types of craniofacial syndromes.
800-535-3643
www.ccakids.org
Cleft Lip/Palate Foundation
Information and referral services for patients with cleft palate, cleft lip and craniofacial anomalies.
800-24-CLEFT
www.cleftline.org
Craniofacial Clinics
Institute for Craniofacial & Plastic Surgery • Norfolk • 757-627-6700 • website
Center for Cleft and Craniofacial Care • Richmond • 804-828-3042 • website
Craniofacial Anomalies Clinic • Charlottesville • 434-924-2528 • website
Cleft Palate Clinic of Southwest Virginia • Roanoke • 540-857-7919 • website
Craniofacial Program - Inova Fairfax Hospital for Children
Provides inpatient and outpatient evaluation and treatment of children with craniofacial anomalies.
703-970-2690
website
FACES:The National Craniofacial Association
Provides resource files of specialized craniofacial centers and other relevant resources and the latest research and information on craniofacial disorders. Also has parent network.
800-332-2373
www.faces-cranio.org
Virginia Smiles
Organization of parents who provide information and support to families and caregivers of children born with a cleft lip and/or cleft palate. .
www.virginia-smiles.org
World Craniofacial Foundation
Dedicated to helping children with craniofacial abnormalities gain access to life-changing medical procedures.
www.worldcf.org
Deaf, Deaf/Blind, Hard of Hearing
Alexander Graham Bell Association for the Deaf and Hard of Hearing
Helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention.
202-337-5220
Virginia Chapter • www.agbellva.org
www.agbell.org
Another Path
Comprehensive guide to homeschooling for parents who are considering homeschooling, or who have decided to homeschool, a deaf or hard of hearing child.
www.Deafhomeschool.com
American Association of the Deaf-Blind
National consumer advocacy organization for people who have a combination of deafness, blindness, partial sight or partial hearing.
301 563-9107 Video Phone
301-495-4403 voice
www.aadb.org
American Sign Language Browser
Website of Michigan State University, where video clips for thousands of ASL signs can be viewed. Also has links to ASL online courses and books.
aslbrowser.commtechlab.msu.edu/index.html
American Society for Deaf Children
National organization of families and professionals committed to educating, empowering, and supporting parents and families.
800-942-2732
www.deafchildren.org
Coalition for Hearing, Education and Research
Mission is to provide support for the necessary resources to the Hampton Roads community so that its citizens can obtain the highest quality and comprehensive services for disorders of the ear, hearing and balance
757-388-6228
757-634-3272
chearvirginia.com
Deaf and Hard of Hearing Services Center
Provides outreach services for the Virginia Department for the Deaf and Hard of Hearing.
800-552-7917 VTTY
Abingdon Area • 276-206-2141 Voice/Videophone
Danville/Pittsylvania Area • 434-797-8479 V/TTY • 434-688-0136 or 866-971-1753 Videophone
Grundy Area • 276-935-0780 TTY • 276-883-9360 Videophone
Lynchburg Area • 434-528-4991 V/TTY • 434-465-6874 Videophone
New River Valley • 540-342-0031 V/TTY • 540-585-4724 Videophone
Norton • 276-679-6103 V/TTY • 276-207-8440 Videophone
Roanoke/Martinsville Area 540-342-0031 V/TTY • 540-266-3053 Videophone
Staunton/Charlottesville/Winchester Area • 540-416-0099 Voice/Videophone
www.deafhh.org
Deaf Mall
Website links to information about deafness culture, issues, education, reference materials and more.
www.deafmall.net
Described and Captioned Media Program
Works to provide all persons who are deaf or hard of hearing access to communication and learning through the use of captioned educational media and supportive collateral materials.
800-237-6213
800-237-6819 TTY
www.dcmp.org
Hands & Voices
Diverse membership includes those who are deaf, hard of hearing, and hearing impaired and their families who communicate orally, with signs, cue, and/or combined methods. Mission is to help children reach highest potential using whatever method works best for the child.
www.handsandvoices.org
Hearing Loss Association of America
Mission is to open the world of communication for people with hearing loss through information, education, advocacy and support.
State Coordinator • 757-535-9364 • www.hlaavirginiabeach.com
Central Virginia Chapter • 434-978-2000
Greater Richmond Chapter • 804-740-8470 • hlagreaterrichmond.com/site
Rappahannock Chapter • 540-373-2559
Virginia Beach Chapter • 757-535-9364 • www.hlaavirginiabeach.com
www.hearingloss.org
Helen Keller National Center for Deaf-Blind Youths and Adults
Mission is to enable each person who is deaf-blind to live and work in his or her community of choice. Also maintains a registry which provides basic information about persons of all ages with deaf-blindness in the United States.
866-351-9089 Videophone
www.hknc.org
National Deaf Education Network and Clearinghouse at Gallaudet University
Provides information for parents and providers including resource lists, communication, organizations and legal issues.
clerccenter.gallaudet.edu
The National Family Association for DeafBlind
National organization that advocates for all persons who are deafblind, encourages the founding and strengthening of family organizations in each state and collaborates with professionals who work with persons who are deaf-blind.
800-255-0411
www.nfadb.org
The National Institute on Deafness and Other Communication Disorders (NIDCD)
Conducts and supports research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language.
800-241-1044
800-241-1055 TTY
www.nidcd.nih.gov
National Consortium on Deaf-Blindness
Provides technical assistance to families and agencies serving children and young adults who are deaf-blind.
800-438-9376
800-854-7013 TTY
www.nationaldb.org
Northern Virginia Resource Center for Deaf and Hard of Hearing Persons
Serves deaf and hard of hearing people and their families, friends, co-workers, employers, and business and government agencies that serve deaf and hard of hearing people.
703-352-9055
703-352-9056 TTY
www.nvrc.org
Tidewater Association for Hearing Impaired Children, Inc
Support and information for families and friends.
757-481-1826
Together We Can:The Virginia Deafblind Project - Partnership for People with Disabilities
Promotes systemic change and school reform to facilitate improved outcomes for learners with dual sensory impairments. Collaborates with state agencies to provide training and technical assistance to teams supporting individuals with both vision and hearing impairments.
877-295-7799
TTY: 711 (VA Relay)
www.twc-deafblind.state.va.us
Virginia Association of the Deaf
Dedicated to the general welfare of the deaf and hard of hearing in the Commonwealth of Virginia, one of the oldest state associations of people who are deaf in the U.S.
Hampton • www.vad.org/hampton.html
Northern Va • www.vad.org/nvad.html
Piedmont • www.vad.org/piedmont.html
See site for other local chapter information
www.vad.org
Virginia School for the Deaf and the Blind
One of the oldest schools in Virginia and the second of its kind in the world. The school utilizes some of the latest and most advanced audio-visual equipment and disability tailored computer applications in its classrooms to provide its students with the best education possible.
Staunton
540-332-9000
800-522-VSDB (8732)
www.vsdbs.virginia.gov
Virginia Department for the Deaf and Hard of Hearing (VDDHH)
Works to reduce and, ultimately, eliminate the communication barriers between persons who are deaf or hard of hearing and those who are hearing. Programs offered: Technology Services, Consumer, Outreach, Interpreter, and Community Support Services, Interpreter Services and Quality Assurance Screening and Sign Language Classes listed by region.
800-552-7917 V/TTY
www.vddhh.org
Virginia Early Hearing, Detection and Intervention Program
Provides information and referral to families regarding newborn hearing screening, follow-up testing, and early intervention services. Website has an extensive list of newborn hearing screening providers throughout the state.
www.vahealth.org/hearing/Providers.htm
Virginia Hearing Aid Loan Bank
Open to children under age 18 whose hearing loss is confirmed by an audiologist. The bank lends hearing aids and FM systems for up to six months. The initial loan period can be extended for an additional three months in certain circumstances. To qualify, families must be residents of Virginia and be in the process of securing permanent hearing aids through insurance or other means. Parents can apply for hearing aids and FM systems by completing an application form. The child's audiologist must complete a portion of the application. www.vdh.virginia.gov/ofhs/childandfamily/childhealth/hearing/valoanerbank.htm
Virginia Relay
Enables people who are deaf, hard of hearing, deafblind, or speech disabled to communicate by TTY (text telephone) or other assistive telephone with anyone who uses a standard phone. Dial 711.
800-552-7917 V/TTY
www.varelay.org
Developmental Disabilities
The Arc of Virginia
Advocacy efforts include providing information and education, and increasing public awareness of the human and civil rights of individuals with mental retardation and other developmental disabilities. Parent to Parent group
provides telephone matches between parents looking for support and information from trained veteran parents.
State Office: Richmond • 804-649-8481 • www.thearcofva.org/
Chapters:
The Arc of Augusta • 540-943-1618 • www.arcofaugusta.org
The Arc of Central Virginia • 434-845-4071 • www.arcofcva.org
The Arc of Eastern Shore • 757-442-3312
The Arc of Halifax • 434-222-8931
Hanover Arc • 804-798-2400 • www.HanoverArc.org
The Arc of Harrisonburg & Rockingham • 540-437-9214 • www.hrarc.org
The Arc of Lenowisco • 276- 565-1220
The Arc of Loudoun County • 703-777-1939 • www.thearcofloudoun.org
The Arc of North Central Virginia • 540-729-5012• arcofnorthcentralva.org
The Arc of Northern Shenandoah Valley • 540-665-0461 • www.thearcofnsv.net
The Arc of Northern Virginia• 703-532-3214 • www.TheArcofNoVa.org
The Arc of New River Valley • 540-558-9510
The Arc of the Peninsula • 757-896-6461• www.arcvap.org
The Arc of the Piedmont • 434-977-4002 • www.thearcofthepiedmont.org
The Arc of Greater Prince William/INSIGHT • 703-670-4800 • www.arcgpw.org
The Arc of Rappahanock • 540-318-6061 • arc-rapp.org
The Greater Richmond ARC • 804-358-1874 • www.richmondARC.org
The Arc of Greater Roanoke Valley • 540-520-1880 • www.arcgrv.org
The Arc of Rockbridge • 540-261-1254
The Arc of Smyth County • 276-783-6801
The Arc of Southside • 434-836-3272 • www.thearcofsouthside.org
The Arc of South Hampton Roads • 757-828-6228 • www.thearcofshr.org
The Arc of the James • thearcsoj@gmail.com
The Arc of Warren County • 540-635-2725 ext. 33242
The Arc of Greater Williamsburg • 757-229-3535 • www.thearcgw.org
Developmental Delay Resources (DDR)
Supports the integration of convential and holistic approaches to learningt and behavioral problems. Provides network for parents and professionals.
800-497-0944
www.devdelay.org
Virginia Board for People with Disabilities
Promotes and facilitates maximum independence, productivity, family support, and community participation of people with disabilities through advocacy, education, and prevention initiatives.
800-846-4464 V/TTY
804-786-0016
www.vaboard.org
Virginia Department of Behavioral Health and Developmental Services
Provides services through a coordinated system of care that respects and promotes the full participation of individuals and their families.804-371-8977 V/TDD
804-786-3921
www.dbhds.virginia.gov
Virginia Easter Seals
Provides services and support, and creating solutions that improve the lives of children and adults with disabilities or other special needs and their families.
800-886-3771
New Castle • (540) 777-7325 x107
Richmond • 804-287-1007
Salem • (540) 777-7325
www.va.easterseals.com
Down Syndrome
Buddy Walks
A program of the National Down Syndrome Society to celebrate Down Syndrome Awareness Month in October and to promote acceptance and inclusion of people with Down Syndrome. To find a local Buddy Walk in your community, visit the "Find a Walk" section of the website.
877-526-0270
www.buddywalk.org
Down Syndrome Association of Fredericksburg
Connects to parents, community members through Facebook.
www.facebook.com/pages/Down-Syndrome-Association-of-Fredericksburg/180877595824
Down Syndrome Association of Greater Richmond
Provides access to current and accurate information on Down syndrome. Also fosters programs that focus on education, community services, public awareness, medical issues, research advocacy, legal issues and parenting.
804-796-5141
www.dsagr.com
Down Syndrome Association of Hampton Roads
Serves needs of individuals with Down Syndrome and their families.
Norfolk • 757-466-3696
www.dsahr.org
Down Syndrome Association of Northern Virginia
Provides individuals with Down syndrome and their families with educational, financial, medical, legal and social support and resources. Works to increase community awareness of the capabilities and contributions of individuals with Down syndrome.
www.dsanv.org
Down Syndrome Association of Roanoke
Goal is to improve the quality of life for all persons with mental and/or physical handicaps and to make Southwest Virginia a model community for individuals with disabilities.
540-772-6460
www.facebook.com/pages/Down-Syndrome-Association-of-Roanoke/152500814791373
Down Syndrome Association of Virginia Peninsula
Offers New Parent Welcome Information, outreach to area hospitals, monthly meetings and social events.
757-969-9263
www.facebook.com/pages/Down-Syndrome-Association-of-Virginia-Peninsula/109179079110975
Down Syndrome Education USA
Associated with Down Syndrome Education International. Works to develop and evaluate education programs, offers conferences for families, teachers and other professionals and supports scientific research.
www.dseusa.org/en/us/
Down Syndrome Online
Comprehensive, up-to-date and reliable information, guidance and news about Down syndrome.
www.down-syndrome.org
Down Syndrome on the Internet
A collection of Down Syndrome related links.
www.downsyndrome.com
Mosaic Down Syndrome on the Web
Website designed to disseminate information about Mosaic Down Syndrome.
www.mosaicdownsyndrome.com
National Down Syndrome Congress
National advocacy organization for Down Syndrome, provides leadership in all areas of concern related to Down syndrome.
800-232-NDSC (6372)
www.ndsccenter.org
National Down Syndrome Society
Distributes informative materials, encourages and supports the activities of local parent support groups, sponsors conferences and undertakes advocacy efforts to increase awareness and acceptance of people with Down syndrome.
800-221-4602
www.ndss.org
Pathfinder Village
Provides services in health, nutrition, safety, and residential living that set the stage for fulfillment through educational, vocational, social, spiritual and recreational programs. Also provides outreach and education services through the Kennedy Willis Center on Down Syndrome.
607-965-8377 ext. 101
www.pathfindervillage.org
Support Organization for Trisomy 18,13, and Trisomy Related Disorders
Network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders.
www.trisomy.org
Emotional Disabilities
Includes information about Mental Illness, Mental Health and Mood Disorders
American Academy of Child and Adolescent Psychiatry
Provides information to aid in the understanding and treatment of the developmental, behavioral, and mental disorders.
202-966-7300
www.aacap.org
Anxiety Disorders Association of America
Promotes the early diagnosis, treatment and cure of anxiety disorders, and is committed to improving the lives of the people who suffer from them.
www.adaa.org
Bazelon Center for Mental Health Law
The nation's leading civil rights organization representing people with mental illnesses or mental disabilities.
202-467-5730
202-467-4232 TDD
www.bazelon.org
Centra Bridges Treatment Center
Residential treatment for boys and girls with a wide-range of emotional and behavioral problems. The goal is to provide the therapeutic intervention, support and structure necessary for each resident to be successful.
Lynchburg • 434.200.5700
mentalhealth.centrahealth.com/services/bridges-treatment-center
The Balanced Mind Foundation
Support for families raising children diagnosed with, or at risk for, early-onset bipolar disorder. Can search for support groups on this site.
www.thebalancedmind.org
Depression and Bipolar Support Alliance
Patient-directed national organization focusing on the most prevalent mental illnesses.Can search for Chapters and Support Groups on this site. Chapters with websites are listed here.
800-826-3632
Northern Virginia • 703-335-5410 • www.dbsanova.org
Fredericksburg • harmony4recovery.com
www.dbsalliance.org
Flipswitch
Portion of the Depression and Bipolar Support Alliance website dedicated to helping teens & 20s understand depression and bipolar disorder.
www.thebalancedmind.org/flipswitch
Healthline.com/health/bipolar-disorder
Portion of the Healthline website with a wealth of information devoted to bipolar symptoms, tests, treatments, etc.
www.healthline.com/health/bipolar-disorder
Mental Health America
The country’s oldest and largest non-profit organization addressing all aspects of mental health and mental illness.
800-969-NMHA (6642)
800-433-5959 TTY
Virginia Headquarters
Richmond • 804-257-5591 • 866-400-6428 • www.mhav.org
Affiliates
Hanover • 804.740.3064 • www.hanovermha.org
Blacksburg • 800-559-2800 • 540-951-4990 • www.mhanrv.org
Staunton • 540-886-7181• www.mha-augusta.org
Lynchburg • 434-847-9055 • www.mhacv.org
Charlottesville • 434-977-4673 • www.mha.avenue.org
Warrenton • 540-341-8732 • www.fauquier-mha.com
Fredericksburg • 800-684-6423 • 540-371-2704• www.mhafred.org
South Boston • 434-572-3992
Roanoke • 540-344-0931 • www.mharv.com
Gainsville • 703.307.0476
www.nmha.org
Resource Guide for Bipolar Disorder
This is a commercial site but includes some very interesting information articles including this one.
www.drugcoupons.com/blog/resource-guide-for-bipolar-disorder.html
Riverside Behavioral Health Center
Provides psychiatric and chemical dependency services to children, adolescents and adults on an outpatient or inpatient basis.
Hampton
757- 827-1001
www.riversideonline.com/rbhc/index.cfm
The Substance Abuse and Mental Health Services Administration's National Mental Health Information Center (SAMHSA)
Mission is to reduce the impact of substance abuse and mental illness on America's communities.
www.mentalhealth.samhsa.gov
Virginia Department of Behavioral Health and Developmental Services
Providing services through a coordinated system of care that respects and promotes the full participation of individuals and their families.
804-371-8977 V/TDD
804-786-3921
www.dbhds.virginia.gov
Virginia State Mental Health Facilities
State facilities provide highly structured, intensive services for citizens of the Commonwealth of Virginia who have a mental illness, intellectual disabilities or are in need of substance abuse services. In the evolutionary movement towards a single, integrated system of care, increased emphasis has been placed on the establishment of community services and on the more effective and efficient use of state facilities. This emphasis has defined the role of state facilities as one of several resources in an overall continuum of care. Patients are initially evaluated and referred to the mental health facilities by staff from Community Services Boards.
www.dbhds.virginia.gov/SVC-StateFacilities.htm
Commonwealth Center for Children and Adolescents
Staunton • 540-332-2100 • www.ccca.dbhds.virginia.gov
Southwestern Virginia Mental Health Institute
Marion • 276-783-1200 • www.swvmhi.dbhds.virginia.gov
Catawba Hospital
Catawba • 540-375-4201 • 276-783-1365 www.catawba.dbhds.virginia.gov
Southern Virginia Mental Health Institute
Danville • 434-799-6220 • www.svmhi.dbhds.virginia.gov
Central State Hospital
Petersburg • 804-524-7000 • www.csh.dbhds.virginia.gov
Eastern State Hospital|
Williamsburg • 757-253-5161 • www.esh.dbhds.virginia.gov
Western State Hospital
Staunton • 540-332-8000 V/TDD • www.wsh.dbhds.virginia.gov
Northern VA MH Institute
Falls Church • 703-207-7100 • www.nvmhi.dbhds.virginia.gov
Virginia Treatment Center for Children
Family focused inpatient and outpatient care. Inpatient programs include Acute Care Crisis Stabilization and Evaluations. Outpatient programs include evaluations, family and individual therapy and specialty clinics.
www.vcuhealth.org/vtcc
VOCAL
Mission is to strengthen the mental health system in Virginia by creating alternatives and complements to services currently available. Also works to keep people connected so that they may strengthen one another through self-determination and peer leadership.
www.vocalvirginia.org
Intellectual Disabilities
See also Developmental Disabilities.
American Association on Intellectual and Developmental Disabilities
Promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual disabilities.
800-424-3688
www.aaidd.org
Community Alternatives, Inc. (CAI)
Services and supports for children, adolescents and adults with developmental disabilities. This includes individuals with co-occurring mental health and substance abuse needs. Specialize in working with individuals who may display challenging behaviors. Programs offer a creative approach to community residential and Day Support options.
757-468-7000
www.comalt.org
National Association for the Dually Diagnosed
Association established for professionals, care providers and families to promote understanding of and services for individuals who have developmental disabilities and mental health needs.
www.thenadd.org
The Arc of VA
Advocates for the human and civil rights of individuals with mental retardation and other developmental disabilities. Advocacy efforts include providing information and education, and increasing public awareness. Parent to Parent group provides telephone matches between parents looking for support and information from trained veteran parents. See above for listing of regional offices.
State Office: Richmond • 804-649-848
www.thearcofva.org
Voice of the Retarded (VOR)
Provides advocacy in order to educate and assist families, organizations, public officials, and individuals concerned with the quality of life and choice for persons with mental retardation within residential options.
www.vor.net
Juvenile Diabetes
American Diabetes Foundation
Provides information, advocacy and support for families.
800-DIABETES (342-2383)
Norfolk • 757-424-6662
Glen Allen • 804-225-8038
www.diabetes.org
Children with Diabetes
Online community resource for kids, families and adults with diabetes.
www.childrenwithdiabetes.com
Juvenile Diabetes Research Foundation
A leading nongovernmental funder of diabetes research.
800-533-CURE (2873)
Capitol Chapter • 202-371-0044 • www.jdrfcapitol.org
Central Va Chapter • 804-254-8014 • www.jdrf.org/centralvirginia
Greater Blue Ridge Chapter • 888-849-0510 • 540-772-1975 • www.jdrfgreaterblueridge.org
Hampton Roads • 757-497-2202 • www.jdrf.org/hamptonroads
www.jdrf.org
Learning Disabilities (LD)
Council for Learning Disabilities
An international organization concerned about issues related to students with learning disabilities.
www.cldinternational.org
International Dyslexia Association
A scientific and educational organization dedicated to the study and treatment of dyslexia.
Virginia Branch (VBIDA) • www.vbida.org
www.interdys.org
Learning Abled Kids
Resource and support website with information, curriculum resources, and tools to homeschool bright children who have learning issues, including reading disabilities, dyslexia, dyscalculia, dysgraphia, central auditory processing disorder (CAPD), ADD, ADHD and more.
www.learningabledkids.com
Learning Disabilities Association of America - Va
Focuses on enhancing educational and vocational services for individuals with learning disabilities who live in Virginia while supporting the efforts of LDA at the national level.
www.Ldavirginia.org
Learning Disabilities Resources
Site contains lists of tools, schools, organizations and professionals and other resources for the LD community as well as articles and commentaries.
www.ldresources.com
LDOnline
Provides parents and teachers with accurate, authoritative information about learning disabilities.
www.ldonline.org
National Center for Learning Disabilities
Dedicated to increasing opportunities for all individuals with learning disabilities to achieve their potential by increasing public awareness and understanding of learning disabilities.
888-575-7373
www.ncld.org
The National Institute for Learning Development
Established to assist schools, organizations, and individuals in the development of programs for students with specific learning disabilities.
877-661-6453
757-423-8646
www.nild.org
Recording for the Blind & Dyslexic - SEE LEARNING ALLY
Works with leading publishers and technology innovators to bring accessible materials to individuals with visual and learning disabilities. RFB&D textbooks are available in every grade level and most subjects.
800-221-4792
434-326-4956
www.rfbd.org
TeachingLD
A service of the Division for Learning Disabilities (DLD) of the Council for Exceptional Children. Readers can find information about curriculum-based measurement for monitoring student progress; teaching methods such a co-teaching and direct instruction; and current issues such as response-to-intervention models.
www.teachingld.org
Yale Center for Dyslexia & Creativity
Mission is to uncover and illuminate the strengths of those with dyslexia, disseminate information, practical advice, and the latest innovations from scientific research, and transform the lives of children and adults with dyslexia.
dyslexia.yale.edu
Neurological Disorders (includes information on ADD and AD/HD)
ADHD Information Library
Informtion about symptoms, treatment options, and side effects, etc.
newideas.net
Children and Adults with Attention Deficit Disorder
Provides support and advocacy, public and professional education, and encouragement for individuals with AD/HD andthose who care for them.
800-233-4050
Shenandoah Valley • 540-241-4754
Hampton Roads • (757) 744-9810 • adhdinhr.wordpress.com
Central Virginia • 804-385-3139
Northern Virginia • 703-641-5451 • www.meetup.com/novachadd
www.CHADD.org
The Epilepsy Foundation
National organization that works for people affected by seizures through research, education, advocacy and service.
800-332-1000
www.epilepsyfoundation.org
Epilepsy Foundation of Virginia
Promotes awareness about epilepsy and provides assistance to those with the disorder.
UVA Health Services Center • Charlottesville • 434-924-8669
Hampton Roads Office • 757-254-7182
Northern Virginia Office • 703-391-1787
Northwestern Virginia Office • 540-908-3400
Richmond Office • 804-549-9875
Southwestern Virginia Office • 540 650-2382
www.efva.org
National Institute of Neurological Disorders and Stroke
The nation's leading supporter of biomedical research on disorders of the brain and nervous system. Website includes large listing of information on individual disorders.
800-352-9424
301-468-5981 TTY
www.ninds.nih.gov
National Resource Center on AD/HD
A program of CHADD, funded through a cooperative agreement with the Centers for Disease Control and Prevention, the center is a clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder (AD/HD).
800-233-4050
www.help4adhd.org
Tourette Syndrome Association, Inc.
Mission is to identify the cause of, find the cure for and control the effects of this disorder. Also offers resources and referrals.Greater Washington DC Chapter
877-295-2148 • www.tsagw.org
www.tsa-usa.org
Tourette Syndrome Plus
On this site, patients, their families, teachers, and clinicians can learn about Tourette’s Syndrome, Attention Deficit Hyperactivity Disorder, Obsessive-Compulsive Disorder, Executive Dysfunction, Juvenile Bipolar Disorder, Autism Spectrum disorders, ensory integration issues and more.
www.tourettesyndrome.net
Neuromuscular Conditions
Families of Spinal Muscular Atrophy
Promotes research to find a cure for Spinal Muscular Atrophies and supports families affected by SMA.
800-886-1762
www.fsma.org
Muscular Dystrophy Association
Programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public
health education.
800-572-1717
www.mdausa.org
Myasthenia Gravis Foundation of America
Goal is to facilitate the timely diagnosis and optimal care of individuals affected by MG and closely related disorders.
www.myasthenia.org
Spinal Muscular Atrophy Foundation
Mission is to accelerate the development of a treatment or cure for SMA, the number one genetic killer of infants and toddlers.
877-FUND-SMA
www.smafoundation.org
Rare Disorders and Genetic Conditions
American Association for Klinefelter Syndrome Information and Support
National volunteer organization with the mission of education, support, research and understanding of XXY and its variants, collectively known as Klinefelter Syndrome.
888-466-5747
www.aaksis.org
Angelman Syndrome Foundation
A genetic disorder that is now believed to have been misdiagnosed as cerebral palsy, autism or other childhood disorders. Mission is to advance the awareness and treatment of Angelman Syndrome through education, information exchange and research.
www.angelman.org
Birth Defect Research for Children, Inc.
Provides parents with information about birth defects and support services for their children. BDRC has a parent-matching program linking families who have children with similar birth defects.
www.birthdefects.org
Celiac Disease Foundation
Informs, assists, and supports people with information about Celiac Disease (CD) and Dermatitis Herpetiformis (DH). Distributes reliable, up-to-date materials about the disease and the gluten-free lifestyle to assist individuals with CD/DH and those yet to be diagnosed.
www.celiac.org
Chromosome Deletion Outreach, Inc.
Education, advocacy, information and support for all those affected by any rare chromosome disorder.
www.chromodisorder.org
CFIDS (Chronic Fatigue and Immune Dysfunction Syndrome) Association of America
Detailed information about CFS, its symptoms, diagnosis, treatment, and important research findings.
www.cfids.org
Cystic Fibrosis Foundation
Dedicated to assuring the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Virginia Chapter
888-233-4682
804-527-1500
www.cff.org/Chapters/virginia
Cystic Fibrosis Center - Children’s Hospital of The King’s Daughters
Norfolk
757-668-7426
www.chkd.org/Services/CF/
Diastrophic Help Site
Website helps the parents of children with diastrophic dysplasia (DDs) solve the very early questions of self-care and adjustments to the home and school environments.
pixelscapes.com/ddhelp
FRAXA
Supports scientific research aimed at finding a treatment and a cure for Fragile X syndrome.
www.fraxa.org
The Genetic Alliance
An international coalition of individuals, professionals and support organizations working together to promote healthy lives for everyone impacted by genetics. Website links to information and support groups sorted by particular genetic disorder.
www.geneticalliance.org
Genetic and Rare Diseases Information Center
Established by the National Human Genome Research Institute (NHGRI) and the Office of Rare Diseases (ORD), the site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.
888-205-2311
888-205-3223 TTY
rarediseases.info.nih.gov
Human Growth Foundation, Inc.
Helps children and adults with disorders related to growth or growth hormone through research, education, support and advocacy.
800-451-6434
www.hgfound.org
International Rett Syndrome Alliance
Supports and encourages medical research to find a cure for Rett syndrome, to increase public awareness and to provide informational and emotional support to families.
800-818-RETT
www.rettsyndrome.org
Klinefelter Syndrome Support Website
www.klinefeltersyndrome.org
Little People of America
Offers information on employment, education, disability rights. adoption, medical issues, clothing, adaptive clothing, and the many stages of parenting a short-statured child - from birth to adult.
888-LPA-2001
www.Lpaonline.org
The MAGIC Foundation
Provides support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth. Includes support services for adults who were also impacted as children by these disorders.
800-362-4423
www.magicfoundation.org
March of Dimes Birth Defects Foundation
Mission is to reduce and prevent birth defects and infant mortality through research, community services, education and advocacy.
Virginia Chapter • www.marchofdimes.com/virginia
www.marchofdimes.com
National Fragile X Foundation
Provides support and resources to families of individuals with Fragile X Syndrome. Also participates in activities to raise awareness and funds to support research.
800-688-8765
www.fragilex.org
Neurofibromatosis, Inc.-Mid-Atlantic
Neurofibromatosis (NF) is a genetic disorder that causes tumors to grow on the nerves anywhere in the body at any time. Organization provides information and referrals to professional resources; camp; peer counseling.
www.nfmidatlantic.org
National Hemophila Foundation (NHF)
Dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
800-42-HANDI
National Capital Area Chapter
703-352-7182 • www.hacacares.org
Virginia Chapter
800-266-8438
vahemophilia.org
www.hemophilia.org
The National MPS Society
Supports research and public and professional awareness to help individuals and families affected by an MPS Mucopolysaccharidosis) or ML (Mucolipidosis) disease.
www.mpssociety.org
National Organization for Rare Disorders
Provides information, including an A-Z index of hundreds of rare diseases, and tries to link parents to support groups for families of children with rare or chronic disabilities.
800-999-NORD (6673)
203-797-9590 TDD
www.rarediseases.org
The National Tay-Sachs & Allied Diseases Association (NTSAD)
Dedicated to the treatment and prevention of Tay-Sachs, Canavan, and related diseases, and to providing information and support to affected individuals and families.
800-906-8723
www.ntsad.org
Pediatric Screening and Genetics Services
Department within Virginia Dept of Health that works to improve the health of children and families by preventing birth defects and developmental disabilities. Includes Newborn Screening Program and Early Hearing Detection and Intervention. Also includes links to other related services and information.
www.vahealth.org/PSGS
The Prader-Willi Syndrome Association
Provides a network of information, support services, and research endeavors to meet the needs of affected children, adults and their families.
800-926-4797
www.pwsausa.org
Prisms
Provides information and support to families of persons with Smith-Magenis Syndrome (SMS) and fosters partnerships with professionals to increase awareness and understanding of SMS.
www.prisms.org
Spina Bifida Association of America
Promotes the prevention of spina bifida and works to enhance the lives of all affected by it. Can search for clinics on this site.
800-621-3141
www.sbaa.org
SBA of the Mid-Atlantic Region
866-938-3407
www.sbamar.org
Turner Syndrome Society of the U. S.
Provides health-related resources to patients, families and physicians for the diagnosis and treatment of Turner syndrome.
800-365-9944
www.turnersyndrome.org
Williams Syndrome Association
Provides the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators. The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life.
800-806-1871
www.williams-syndrome.org
Speech and Language Delays and Disabilities
American Speech-Language Hearing Association
Works to ensure that all people with speech, language, and hearing disorders have access to quality services to help them communicate effectively.
800-638-8255
301-296-5650 TTY
www.asha.org
A Step Above SLP
Private practice serving Northern Virginia. Uses evidence-based techniques to provide diagnostic and therapeutic speech and language services in the areas of articulation, social communication, expressive/receptive language and literacy development.
www.astepaboveslp.com
Augmentative and Alternative Communication (AAC) Institute
Organization dedicated to the most effective communication for people who rely on augmentative and alternative communication (AAC).
www.aacinstitute.org/index.html
Blue Ridge Speech & Hearing Center
Not-for-profit community resource offering speech, language, and hearing professional services at a sliding scale of fees for those whose financial situation warrants it.
703-858-7620
www.speechhearing.org
Childhood Apraxia of Speech Association of North America
Mission is to strengthen the support systems in the lives of children with apraxia so that each child has their best opportunity to develop speech.
www.apraxia-kids.org
Clearly Speaking
Goal is to enhance communication skills and quality of life. Uses a collaborative model to work with the child's family, pediatrician, school and other professionals is essential in order to provide the most successful therapy.
Herndon
703-435-0488
www.clearlyspeakingtherapy.com
Dower and Associates, Inc.
A multi – disciplinary private practice with a focus in speech/language, education and behavior analysis. Current staff of speech/language pathologists, behavior technicians and tutors provide services (e.g., evaluations, therapy, tutoring, training, functional behavior assessments) and consultations to children in a variety of settings, (i.e., clinic, office, private and public schools)
Aldie, Leesburg, Manassas
703-618-6180
www.dowerandassociates.com
The National Center For Stuttering
Information, research and support for those who stutter. As of November, 2012, this site now appears to be an endorsement for a product entitled The Airflow Technique.
www.stuttering.com
National Institute on Deafness and Other Communication Disorders (NIDCD)
Conducts and supports research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language.
800-241-1044
800-241-1055 TTY
www.nidcd.nih.gov
Speech Beginnings, PLC
A pediatric speech-language therapy practice serving Northern Virginia. We provide in-home diagnostic and therapeutic services to children of all ages, with an emphasis on preschool and elementary-aged children.
Alexandria
571-481-4344
speechbeginnings.com
Speech-Language-Hearing Association of Virginia
Association of audiologists and speech language pathologists working to develop, expand, and provide information concerning speech, language, and hearing services.
888-729-7428
www.SHAV.org
Speech, Language and Hearing Clinic at Hampton University
Full service facility providing diagnostic and therapeutic services in the areas of speech, language and hearing disorders to persons of all ages. Services are available by appointment only throughout the university's academic year as well as during the summer session.
757-727-5000
science.hamptonu.edu/csad/services.cfm
The Stuttering Foundation Of America
Resources, services and support for those who stutter, as well as support for research into the causes of stuttering.
800-992-9392
www.stutteringhelp.org
United States Society for Augmentative and Alternative Communication
National chapter of ISAAC, the International Society for Augmentative and Alternative Communication; organization dedicated to supporting the needs and desires of people who use AAC, as well as the family members, professionals, and manufacturers making up our community.
GENERAL RESOURCES
Advocacy and General Information
Access Ministry of McLean Bible Church
Serves the community by equipping people with disabilities and their families to become full participants and contributors in the church and their community. See website for many services offered.
703-770-2942
mbctysons.org/access
The Arc of VA and their local chapters
See Arc information listed elsewhere in this list.
The Association for the Severely Handicapped (TASH)
An international association of people with disabilities, their family members, other advocates, and professionals working for a society in which inclusion of all people in all aspects of society is the norm.
www.tash.org
Center for Family Involvement
As part of the Partnership for People with Disabilities at Virginia Commonwealth University, this group works with families to increase their skills as advocates, mentors, and leaders so families, and children and young adults with disabilities can lead the lives they want.
www.centerforfamilyinvolvement.org
Children’s Disability Information
Extenisve information, articles, books and support for families.
www.childrensdisabilities.info
Comprehensive Services Act Service Provider Directory [The Virginia]
Database mandated by a 1993 Virginia Law, which provides for high quality, child centered, family focused, cost effective, community-based services to high-risk youth and their families.
804-662-9815
www.csa.virginia.gov
Community Service Boards (CSB)
Provides services that:
• Insure the growth and development of infants who have or are at risk of developmental disabilities, birth to age 3.
• Enable children and youth with mental illness, intellectual disability, and substance abuse disorders to remain in their homes, schools, and communities.
• Work to preserve and enhance families.
• Meet the residential, outpatient, and day support needs of citizens with severe mental illness.
• Offer opportunities for occupational and residential independence for citizens with intellectual disability
• Respond to psychiatric emergencies.
• Promote resiliency in youth and communities through prevention and education activities.
• Support the efforts of schools, Department of Social Services, law enforcement agencies, and courts in a coordinated manner.
• Prevent further incidence of mental illness, intellectual disability and substance abuse.
• Effectively treat citizens with substance abuse disorders.
• Support the care of elderly citizens with mental disabilities and their families.
• Assist families in caring for members with mental disabilities.
Search for local offices on the site.
www.vacsb.org
Council of Community Services
A member organization of the Virginia’s statewide information and referral system which works to “ensure access to information and resources needed by individuals, organizations and decision-makers to forecast and meet human needs to improve the quality of life of all members of the community.”
800-354-3388
540-985-0131
www.councilofcommunityservices.org
Disabled World -
Primary focus is to provide information and news to the public, disability community and organizations, as well as disabled rights campaigners, via our Disabled World News Service, Articles, Press Releases, and Disability Videos.
www.disabled-world.com
Disability Events Calendar
Portion of Disabled World website displaying listings which include disability awareness, exhibitions of disabled products and aids, daily living aids, home-care, conferences, workshops, festivals, and various other special events. The list of coming events concerning disability and health is updated regularly with information gathered from public sources, submissions by the public, and health and disability organizations worldwide.
www.disabled-world.com/news/events
DisabilityInfo.gov
Comprehensive online resource designed to provide people with disabilities with access to disability-related information and programs available across the government on subjects including civil rights, education, employment, housing, health, income support, technology, transportation, and community life.
www.disability.gov
Disability Rights Education and Defense Fund Inc.
A national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and education and training.
510-644-2555 VTTY
www.dredf.org
Disability Statistics
A Cornell University online resource for disability statistics. Created and maintained by the Employment and Disability Institute. Funded by the U.S. Department of Education National Institute on Disability and Rehabilitation Research.
www.disabilitystatistics.org
Education Law Project at Legal Services of Northern Virginia
See also The Law Center for Children (“TLC”) at Legal Services of Northern Virginia under LEGAL category.
A child advocacy program that offers eligible low income families free consultation, advice and representation on special education issues including school discipline matters.
703-504-9141
866-534-5243
www.lsnv.org
The Employment and Disability Institute (EDI)
Advances knowledge, policies, and practices to enhance the opportunities of people with disabilities through projects,training, technical assistance, research, and publications.
www.ilr.cornell.edu/edi/index.cfm
Exceptional Family Member Program
Provides information on services and resources available to military families with special medical or educational needs. Each branch of the service has its own EFMP. Contact your local military base for more information.
www.militaryonesource.mil/efmp
The Family Involvement Project
Strengthens and increases families’ voices in policy and fiscal decision- making councils at the local and state level of Virginia’s early intervention systems. Links to resources.
(804) 649-8481
www.arcfip.org
FamilyVoices
National grassroots network of families, friends and advocates for health care services; promotes the inclusion of all families as decision makers at all levels of health care; and supports essential partnerships between families and professionals.
888-835-5669
www.familyvoices.org
Hampton Committee for People with Disabilities
Advocates for people with disabilities.
757-727-8311
www.hampton.va.us/pwd/index.html
International Center for Disability Resources on the Internet
Mission includes the collection of a knowledge base of quality disability resources and best practices and to provide education,
outreach and training based on these core resources.
www.icdri.org
Jewish Social Service Agency of Metropolitan Washington
Offers special needs services to individuals and family members.
Northern Virginia Office • 703-204-9100
www.jssa.org
KidNeeds.com
Website with comprehensive information on topics such as public health policy and advocacy efforts, links to articles, programs and services, and a wide range of products specifically tailored for children with special needs.
kidneeds.com
Mid-Atlantic ADA Center
Provides information, guidance and training on the Americans with Disabilities Act (ADA), tailored to meet the needs of businesses, government entities, organizations, and individuals in the Mid-Atlantic Region (DC, DE, MD, PA, VA, and WV). Links to services and resources all over the U.S.
800-949-4232 V/TTY
www.adainfo.org
National Disability Rights Network
Serves a wide range of individuals with disabilities by guarding against abuse; advocating for basic rights; and ensuring accountability in health care, education, employment, housing, transportation, and within the juvenile and criminal justice systems.
www.ndrn.org
National Information Center for Children and Youth with Disabilities (NICHCY)
Provides information about specific disabilities, agencies for special education and related services, individualized education programs, parent materials, disability organizations, professional associations, education rights, early intervention services and transition.
800-695-0285 V/TTY
www.nichcy.org
National Organization on Disability
Advocates internationally and nationally for the mainstreaming andfull participation of people with disabilities in all aspects of life.
202-293-5960
www.nod.org
National Rehabilitation Information Center
Organization dedicated to improving the quality of life for all persons with disabilities. Also provides a searchable database on the Internet including the Guide to Periodicals on Disability Rehabilitation. Access resources for employment, advocacy, benefits and financial assistance, education, technology, and more.
800-346-2742
301-459-5984 TTY
www.naric.com
Olmstead LawWebsite
United States Supreme Court decision which states that persons with disabilities who live in, are “at risk” of living in, or are eligible for placement in facilities or institutions, have a right to live in the community if
• They and their treatment teams agree that they can live successfully in the community;
• They choose to live in the community; and
• Resources are available to help them live in the community.
www.olmsteadva.com
PACER Center (Parent Advocacy Coalition for Educational Rights)
Dedicated to expanding opportunities and enhancing the quality of life for children and young adults with disabilities and their families, based on the concept of parents helping parents.
www.pacer.org
Parent Educational Advocacy Training Center (PEATC)
Virginia's Parent Training and Information Center (PTI). Each state has at least one PTI Center to provide training & information to parents to enable them to participate more effectively with professionals in meeting the educational needs of their children.
800-869-6783
Falls Church • 703-923-0010 V/TTY
www.peatc.org
Partnership for People with Disabilities
Operates more than 20 federal and state programs which support individuals with disabilities and their families. Partnership maintains an interdisciplinary approach to all of its activities, which allows it to explore a wide spectrum of professional services and community interests as it seeks to expand opportunities to individuals with disabilities.
800-828-1120 TDD
804-828-3876
www.vcu.edu/partnership
Social Security Disability Resource Center
Provides information on the federal disability benefit programs, SSD (social security disability, mandated under title II of the social security act) and SSI (supplemental security income, mandated under title 16).
www.ssdrc.com
Specialized Training of Military Parents (STOMP)
Federally funded Parent Training and Information (PTI) Center established to assist military families who have children with special education or health needs.
800-5-PARENT V/TTY
www.stompproject.org
Special Needs and the Foreign Service Child
Portion of US Dept of State website wherein shows the Family Liaison Office which serves Foreign Service families looking for help with the special educational needs of their child(ren).
Website
TASK (Taking Action for Special Kids)
Independent non-profit agency serving the special needs citizens of Tazewell County for over 25 years. Helps families of special needs children get the services they need by providing information, referrals, support groups, workshops and advocacy.
276-979-0408
www.taskforkids.org
Virginia Beach Committee for Persons with Disabilities
The Mayor's Committee works to improve the awareness of every person's abilities rather than their disabilities. The Committee works to make Virginia Beach the most accessible city in the U.S.
website
Virginia Board for People with Disabilities
See listing and contact information elsewhere in this document.
Virginia Easy Access
A public private partnership with the Commonwealth of Virginia, SeniorNavigator, and 2-1-1 Virginia for seniors and adults with disabilities and the providers that support them.
800-552-3402 V/TTY
804-662-9333
www.easyaccess.virginia.gov
Virginia Rehabilitation Association
A chapter of the National Rehabilitation Association.
www.vra.org
Voices for Virginia's Children
The Commonwealth's only statewide multi-issue organization advocating for children and youth, Voices promotes sound, far-reaching program and policy solutions, focusing on early care and education, health care, family economic success, and foster care and adoption.
703-277-7748
804-649-0184
www.vakids.org
Assistive Technology
Abledata
Contains information on more than 40,000 assistive technology products sorted by 20 categories. Database contains detailed descriptions of products, including price and company information.
800-227-0216
301-608-8912 TTY
www.abledata.com
Accessibility Equipment Websites
• Adaptive Access Company - accessible construction and safety equipment. www.adaptiveaccess.com
• AskToolTalk.com - Articles about accessibility issues. Website
Assistivetech.net
Web resource for assistive technology (AT) with links to a wide variety of AT and disability-related information.
800-726-9119 V/TTY
www.assistivetech.net
Assistive Technology Tools for Learning and Daily Living Needs
• Don Johnston Inc. - Intervention products for literacy instruction. www.donjohnston.com
• IntelliTools, Inc - Learning solutions for the diverse classroom for grades K-8. www.intellitools.com
• Integrations - Products for the classroom, for therapists and for the home. www.integrationscatalog.com
AssistiveTechnology Loan Fund Authority (ATLFA)
A low interest loan program that assists Virginians with disabilities to get the assistive technology they need. Also provides Telework loans for individuals working from home who need equipment for their home business.
866-835-5976
804-662-9000
www.atlfa.org
Center for Universal Design
National information, technical assistance, and research center that evaluates, develops, and promotes accessible and universal design in housing, commercial and public facilities, outdoor environments, and products. Works to improve environments and products through design innovation, research, education and design assistance.
800-647-6777
design.ncsu.edu/cud
Additional Resources and References for Universal Design
• Adaptive Access Company
www.adaptiveaccess.com/home_changes.php
• AskToolTalk.com
www.asktooltalk.com/articles/construction/accessibility/accessible_bathrooms.php
• Charles Schwab Architects and Schwab Publishers
www.universaldesignonline.com
• Universal Design Products
www.universal-design-products.com
Equipment Connection
This lending program for all ages includes a collection of mobility, positioning equipment and hospital beds.
Rappahannock
540-899-3789
arc.communitypoint.org/Equip/index.htm
Family Center on Technology and Disability
Online resource designed to support organizations and programs that work with families of children and youth with disabilities. Offers information and services on the subject of assistive technologies. Extensive listing of resources.
202-884-8068
www.fctd.info
Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
An interdisciplinary association of people with a common interest in technology and disability whose purpose is to improve the potential of people with disabilities to achieve their goals through the use of technology.
703-524-6686
www.resna.org
Rehabilitation Equipment Exchange Network
Free service to facilitate the exchange and transfer of used rehabilitation equipment. Individuals can use the website to buy, sell, or donate used rehab items of many types, including wheelchairs, pediatric equipment, mobility aids, ADL aids, communication devices, assistive technology, and exercise equipment.
www.rehabequipmentexchange.com/index.html
Virginia Assistive Technology System
Statewide project committed to improving the quality of life for all Virginians by increasing awareness and accessibility of assistive technology.
• VATS Central Office - Richmond
800-552-5019
804-662-9990
• VATS Northern Regional Site - Helen A Kellar Institute for Human disAbilities • Fairfax
703-993-3670 • kihd.gmu.edu/vatsnorth
• VATS Southwest Regional Site - Virginia Tech • Blacksburg
540-231-4270 • www.swvats.soe.vt.edu
• VATS Southeast Regional Site - Old Dominion University • Norfolk
757-683-3639 • www.lions.odu.edu/org/vats/
www.vats.org
Woodrow Wilson Rehabilitation Center
Provides evaluation, consultation and treatment programs for individuals who require assistive technology to live, work and get to school as independently as possible.
Fishersville
800-345-9972
800- 811-7893 TTY
540-332-7132
www.wwrc.virginia.gov
Child Care
Care.Com
Website that helps to search for caregiver for child or other amily member with special needs.
www.care.com
Catalyst Childcare
Home-based childcare, particularly for children with communication challenges and severe disabilities.
Burke
703-239-2125
Choosing Quality Child Care - A Resource Guide
Produced by the Divisions of Licensing Programs and Family Services in Richmond.
804-692-1787
www.dss.virginia.gov/family/cc/publications.cgi
Commonly Asked Questions About Child Care Centers And The Americans With Disabilities Act
800-514-0301
800-514-0383 TDD
www.usdoj.gov/crt/ada/childq&a.htm
Special Care Nannies
Provides specialized childcare placements for families with special needs children.
McLean
703-356-3118
Virginia Child Care Resource and Referral Network
Statewide organization established to promote and support quality child care resources throughout Virginia and to coordinate the efforts of local agencies. Search for local agencies on the website.
800-285-0846
866-481-1913
www.vachildcare.org
Community Service Organizations
Civitan International
A volunteer organization of clubs dedicated to serving individual and community needs with an emphasis on helping people with developmental disabilities. Search website for local groups.
www.civitan.org
Knights of Columbus of Virginia
Provides financial assistance through grants and home loans to tax exempt organizations providing training and assistance to citizens with mental retardation.
800-22-KOVAR
www.kovarva.com
Virginia Lions Clubs
In addition to programs which includes collection and distribution of used eyeglasses, Lions also work to serve the hearing impaired, promote diabetes awareness, sponsor youth programs and more. Search website for local groups.
State Office • Roanoke • 540-774-2495
www.lionsofvirginia.org
Early Intervention/Early Childhood/ Preschool
Child Development Resources
Provides services for children and their families, and provides training at the local, state, regional, and national levels for early childhood and early intervention professionals.
757-566-3300
www.cdr.org
Child Welfare League of America
Coalition of private and public agencies serving vulnerable children and families.
www.cwla.org
Head Start
A national program that promotes school readiness by enhancing the social and cognitive development of children through the provision of educational, health, nutritional, social and other services to enrolled children and families.
www.acf.hhs.gov/programs/ohs/
Infant & Toddler Connection
Provides early intervention supports and services to infants and toddlers from birth through age two who are not developing as expected or who have a medical condition that can delay normal development. Early intervention supports and services focus on increasing the child's participation in family and community activities that are important to the family. In addition, supports and services focus on helping parents and other caregivers know how to find ways to help the child learn during everyday activities. These supports and services are available for all eligible children and their families regardless of the family's ability to pay. Can search for local offices (Central Directory) through this site.
www.infantva.org
National Association for the Education of Young Children (NAEYC)
The world's largest organization working on behalf of young children, from birth through age 8. NAEYC convenes thought leaders, teachers and other practitioners, researchers, and other stakeholders and sets standards of excellence for programs and teachers in early childhood education. NAEYC members include teachers, paraeducators, center directors, trainers, college educators, families of young children, and the public at large.
www.naeyc.org
Va Dept of Health Child Development Clinics
Provides diagnostic services for children with developmental delays or discrepancies, which may include such conditions as hyperactivity, behavioral disorders, health problems, learning problems and mental retardation. The clinics perform multidisciplinary evaluations, including psychological, educational, medical (pediatrician), and social work components, depending on the needs of the child. Additional consultations and health related services available as needed. Satellite or field clinics may be conducted on a regular or as needed basis. Contact the Child Development Clinic nearest you to determine availability. Most clinics listed serve ages birth through 21 years.
Danville • 434-797-1040
Fredericksburg • 540-891-3151
Gate City • 276-386-3803
Harrisonburg • 540-568-6687
Lynchburg • 434-947-2030
Norfolk • 757-683-8770
Richmond • 804-827-2100
Roanoke • 540-722-3484
Winchester • 540-722-3484
www.vahealth.org/specialchildren/cdsprogram.asp
Educational Resources –See also Schools for Individual School listings
ACCESS Project – Colorado State University
Offers information and resources about Universal Design for Learning (UDL) including a series of UDL modules, and a section on research being conducted at the university regarding the use of UDL in classes.
accessproject.colostate.edu
All Kinds of Minds
Primary goal is to educate teachers, parents, educational specialists and students about differences in learning, so that children who are struggling in school because of the way their brains are “wired” are no longer misunderstood.
www.allkindsofminds.org
Center for Applied Special Technology (CAST)
Offers information related to Universal Design for Learning, including publications, products, and professional development resources.
www.cast.org
Center for Implementing Technology in Education (CITEd)
Created to support state and local education agency leadership to enhance the use of technology to support students in achieving positive education outcomes. Site contains a variety of external resources related to UDL.
www.cited.org
Colleges with Programs for Learning Disabled Students
Website with listing of U.S. colleges and universities with contact information, that offer programs designed to support students with learning disabilities.
www.college-scholarships.com/learning_disabilities.htm
Council for Exceptional Children
Advocates for appropriate governmental policies, sets professional standards, provides professional development, advocates for individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
888-232-7733
866-915-5000 TTY
www.cec.sped.org
Education Database Online
Comprehensive information about every college and university in the United States.
www.onlineeducation.net
Educational Resources Information Center
National information system funded by the U.S. Department of Education’s Institute of Education Sciences to provide access to education literature and resources.
www.eric.ed.gov
Education Week
Weekly newspaper – reader can subscribe online and in hard copy – publishing information about current topics in education.
www.edweek.org
National Instructional Materials Accessibility Standard
Guides the production and electronic distribution of digital versions of textbooks and other instructional materials so they can be more easily converted to accessible formats, including Braille and text-to-speech.
nimas.cast.org
Regional Resource and Federal Centers Network (RRFC)
Funded by the federal Office of Special Education Programs (OSEP) to assist state education agencies in improving education programs, practices, and policies that affect children and youth with disabilities. Through the RRC Program, the individual RRCs work collaboratively to help states and U.S. jurisdictions identify and address issues both within and across regions, as well as nationally. The RRCs are able to facilitate networking and information-sharing among states and U.S. jurisdictions with similar challenges and needs regardless of the specific regional location.
www.rrcprogram.org/cms2
Homeschooling Resource Websites
• Help in School
Resources for the parents and teachers of students with special needs
www.helpinschool.net
• Home Educators Association of Virginia
More than 2,000 web pages of Virginia homeschool information, resources, field-trip ideas, etc.
www.heav.org
• Learning Abled Kids
Resource and support website with information, curriculum resources, and tools to homeschool bright children who have learning issues, including reading disabilities, dyslexia, dyscalculia, dysgraphia, central auditory processing disorder (CAPD), ADD, ADHD and more.
www.learningabledkids.com
• Virginia Home Schoolers Association
Volunteer organization providing information and advocating for the homeshoolers.
www.vahomeschoolers.org
• Home School Legal Defense Association
www.hslda.org
• Homeschool Central
Information and curriculum for homeschoolers.
www.homeschoolcentral.com
• Brightword
Family, Education & Advocacy Resources
www.brightword.com/homeschooling- special-needs.html
• Moore Expressions
A used and new book store specializing in homeschool materials
www.mooreexpressions.com
• About.com - Homeschooling - Special Needs
Informational website.
homeschooling.about.com/od/specneeds/Homeschooling_Special_Needs.htm
IDEA 2004 Resources
Portion of the U.S. Dept of Education website that contains news and information on the Individuals with Disabilities Education Improvement Act of 2004 (IDEA), the nation's law that works to improve results for infants, toddlers, children and youth with disabilities.
idea.ed.gov
Inclusive Schools Network
Web-based resource for families, schools and communities that promotes inclusive educational practices. This resource has grown out of Inclusive Schools Week™ which works to encourage and empower people to design and implement effective inclusive schools, by sharing insights and best practices and by providing opportunities for connection.
www.inclusiveschools.org
Just-Us-Kidz, Inc. Parent Resource Center
Provides training and information to parents of infants, toddlers, children, and youth with disabilities and to professionals who work with children. Helps parents to participate more effectively with professionals in meeting the educational needs of children and youth with disabilities.
757-283-6368
justuskidz.org
National Association of Private Special Education Centers (NAPSEC)
An association representing private special education programs and affiliated state associations, established to ensure access for individuals to appropriate private special education programs and services.
www.napsec.org
The National Center on Severe and Sensory Disabilities
Articles and research that relate to improving the nation’s capacity to teach children with sensory and severe disabilities.
800-395-2693
www.unco.edu/ncssd/index.shtml
National Coalition for Parent Involvement in Education
Advocates for the involvement of parents and families in their children's education, to foster relationships between home, school, and community, which will enhance the education of all young people.
www.ncpie.org
Office of Special Education and Rehabilitation Services (OSERS)
Programs Include:
• Office of Special Education Programs (OSEP) - Dedicated to improving results for infants, toddlers, children and youth with disabilities ages birth through 21 by providing leadership and financial support to assist states and local districts.
• Rehabilitation Services Administration (RSA) Oversees formula and discretionary grant programs that help individuals with physical or mental disabilities to obtain employment and live more independently through the provision of such supports as counseling, medical and psychological services, job training and other services.
• The National Institute on Disability and Rehabilitation Research (NIDRR) Provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities.
www.ed.gov/about/offices/list/osers/index.html
Parent Educational Advocacy Training Center (PEATC)
Assists families of children with disabilities through education, information and training. PEATC builds parent-professional partnerships to promote success in school and community life.
703-923-0010 V/TTY
www.peatc.org
Project Forum
Works to facilitate improved services to children and youth with disabilities by gathering and sharing information that supports changes to policy and practice at the national, state and local levels. Each year, Project Forum:• identifies 15 critical topics within the field of special education;
• conducts policy analyses on these topics;
• convenes policy forums on two of these topics;
• distributes information that will contribute to better results for children with disabilities.
www.projectforum.org
Southeastern Cooperative Educational Programs
This organization provides a formal structure through which the participating school systems can plan and operate programs for children with special needs. SECEP presently comprises five programs:
• The Re-ED Program
• The Autistic Children's Program (ACP)
• Educational and Behavioral Interventions for Challenging Students (EBICS)
• Tidewater Regional Alternative Education Program (TRAEP)
• Raising Expectations and Abilities for Children with Complex Health needs (REACH).
757-892-6100
www.secep.net
Special Education Resources on the Internet
A collection of Internet accessible information resources of interest to those involved in the fields related to Special Education. Editor's note: this website has useful info but does not appear to have been updated for several years.
www.seriweb.com
Training/Technical Assistance Centers (T-TAC)
Works to improve educational opportunities and contribute to the success of children and youth with disabilities. Centers provide quality training and technical assistance in response to local, regional, and state needs through activities such as: consultation, information services, (including periodic newsletters), linking and networking resources together, lending library of multimedia resources and technology, long range planning, referral to other services and workshops.
• Virginia Commonwealth University, Richmond • 800-426-1595 • www.vcu.edu/ttac
• Old Dominion University, Norfolk • 888-249-5529 • www.ttac.odu.edu
• College of William and Mary, Williamsburg • 800-323-4489 • www.wm.edu/TTAC
• George Mason University, Fairfax • 703-993-3670 • ttac.gmu.edu
• James Madison University, Harrisonburg • 888-205-4824 • ttac.cisat.jmu.edu
• Virginia Polytechnic Institute and State University, Blacksburg • 800-848-2714 • www.ttac.vt.edu
• Radford University, Radford • 877-544-1918 • ru-portal.radford.edu/ttac
www.ttaconline.org
Virginia Association of Independent Schools
Organization that promotes educational, ethical and professional excellence through its school evaluation/accreditation program, attention to professional development and insistence on integrity. Search for member school on this site.
www.vais.org
Virginia Association of Independent Specialized Education Facilities
Association of Virginia private providers of specialized education services for children and youth with special needs, and their families. Search for schools and facilities on this site.
www.vaisef.org
Virginia Department of Education Useful Web pages
Redesigned pages make navigation relatively simple.
800-292-3820 • www.doe.virginia.gov/index.shtml
• Office of Special Education and Student Services
800-422-2083 • 800-422-1098 TDD
www.doe.virginia.gov/special_ed/index.shtml
• Parent Ombudsman
Serves as a 'designated neutral' advocating for a fair process.
800-422-2083 • 804-371-7420
www.doe.virginia.gov/special_ed/resolving_disputes/ombudsman/index.shtml
• Guidelines for the Participation of Students with Disabilities in the Assessment Component of Virginia’s Accountability System
www.doe.virginia.gov/testing/participation/participation_va_accountability_system.pdf
• Department of Education Mediation
Information provided by VADOE to help school personnel and parents contact mediators to attain assistance in resolving school services conflicts.
www.doe.virginia.gov/special_ed/resolving_disputes/mediation/index.shtml
• Office of Dispute Resolution and Administrative Services
Information about due process procedures and information.
804-225-2013
www.doe.virginia.gov/about/spec_ed_and_stu_svs/index.shtml
• Parent’s Guide to Special Education In English
www.doe.virginia.gov/special_ed/parents/parents_guide.pdf
• Parent’s Guide to Special Education In Spanish
www.doe.virginia.gov/special_ed/parents/parents_guide_spanish.pdf
• Special Education Advisory Committee
The State Special Education Advisory Committee (SSEAC) is organized and functions in accordance with state and federal requirements. The Committee's functions include the following:
• Troubleshooting Parents' Special Education Concerns Within A Local School Division
Information to help deal with local school division staff.
www.doe.virginia.gov/special_ed/resolving_disputes/troubleshooting_special_ed.pdf
Virginia Federation of the Council for Exceptional Children (VA CEC)
Works to ensure that the needs of children and youth with exceptionalities are met in educational legislation, establishes professional standards for the field, and develops initiatives to improve special education practice. Additionally, CEC is known as a quality source for evidence-based information, resources, and professional development for special educators.
www.virginiacec.org
What Works Clearinghouse
Established in 2002 by the U.S. Department of Education's Institute of Education Sciences (IES) to provide educators, policymakers, researchers, and the public with a central source of scientific evidence of what works in education.
www.whatworks.ed.gov
Emergency Preparedness
The American Academy of Pediatrics
Association dedicated to the health, safety and well being of infants, children, adolescents and young adults. Website contains links to many topics of interest, including section on emergency preparedness. See below.
www.aap.org/disasters/index.cfm
Children's Hospital and Regional Medical Center
Site lists organizational documents and systems to help you keep track of important information about your child's health and care.
cshcn.org/planning-record-keeping
Emergency Preparedness for Children with Special Health Care Needs
American Academy of Pediatrics Site has an Emergency Information Form which can be used as a tool to keep track of critical information about children’s special medical needs.
www.aap.org/advocacy/emergprep.htm
National Organization on Disability Emergency Preparedness Initiative
Ensures that emergency managers address disability concerns and that people with disabilities are included in all levels of emergency preparedness- planning, response, and recovery. Brochures with specific information for people with different types of disabilities are available to be downloaded from the website.
www.nod.org/emergency
Financial and Life Planning
Commonwealth Community Trust
National nonprofit that administers affordable third party and self funded pooled special needs trusts. These trusts protect the beneficiary's Supplemental Security Income (SSI) and Medicaid and will pay for a wide variety of expenses for the individual.
888-241-6039
804-740-6930
www.commonwealthcommunitytrust.org
Mortgage and Home Loan Help Guide for the Disabled
Guide created to help individuals living with disabilities, and their family members, in the process of buying a home of their own. Learn more about the five important steps in buying a home and about financial assistance programs that are available for you living with disabilities, who want to buy a home.
www.mortgageloan.com/disabilities
The Washington Group Special Care Planning Team
Special Care Planners assist families with developing financial strategies, and creating strategic financial solutions that integrate with Government programs and other community supports. Through network of organizations, professionals, and specialists, provides appropriate referrals to further assist families with unique situations. Can also help coordinate family education and communication.
Fairfax
703-279-6561
www.massmutual.com/specialcare
Health
Adolescent Health Transition Project
A tool for teens to learn more about his/her general health and specific special health need and/or disability, how to access information and how to articulate knowledge of his/her condition with adult health care providers and others. Also helps parents know what their teen knows about his/her condition and therefore what gaps in knowledge and experience must be learned before the teen transitions to adult health care, work and independence. Available in Chinese, Korean, Russian, Spanish and Vietnamese.
depts.washington.edu/healthtr
American Academy of Pediatrics
Association dedicated to the health, safety and well being of infants, children, adolescents and young adults. Website contains links to many topics of interest.
www.aap.org
Bravekids.org
Online community for children with special needs and their caretakers. Message Boards connect parents to others in similar situations around the world. Directory of Healthcare Resources is based on zip codes to help families locate providers in their area.
Bravekids.org
Care Connection for Children
Statewide network of centers of excellence for children with special health care needs (CSHCN) that provide leadership in the enhancement of specialty medical services; care coordination; medical insurance benefits evaluation and coordination; management of the CSHCN Pool of Funds; information and referral to CSHCN resources; family-to-family support; and training and consultation with community providers.
Locations:
Southwest Virginia Care Connection for Children (Bristol):
(276) 645-4900 • 800-704-1285 • www.vahealth.org/swccc/index.htm
Blue Ridge Care Connection for Children (Charlottesville):
(434) 924-0222 • 866-596-9367 • www.healthsystem.virginia.edu/pub/blueridgecc
Northern Virginia Care Connection for Children (Falls Church):
(703) 531-3131 • 866-222-0372 • www.inova.org/inova-in-the-community/care-connection-for-children/index.jsp
Hampton Roads Care Connection for Children (Norfolk):
(757) 668-7132 • 800-864-8903 • www.chkd.org/services/careconnection
Central Virgina Care Connection for Children (Richmond):
(804) 827-1795 • 866-737-5965 • www.careconnections.vcu.edu
Roanoke Area Care Connection for Children (Roanoke):
(540) 985-8470 • 866-906-2999 • www.carilionclinic.org/Carilion/Care_Connection
www.vahealth.org/specialchildren/cccprogram.asp
Carilion Clinic
Healthcare organization with more than 600 physicians in a multi-specialty group practice and eight not-for-profit hospitals. Headquartered in Roanoke, Carilion Clinic serves approximately 1 million people in western Virginia.
800-422-8482
www.carilionclinic.org
Children’s Hospital of Richmond
A resource and provider of specialized medical and therapeutic services to children and adolescents with temporary to lifetime needs. Pediatric specialty services offered at hospital’s main location, two Richmond area Therapy Centers, and a Fredericksburg Therapy Center. Inpatient and outpatient services include physical, occupational and speech/language therapy, and family-centered, team-based programs led by physician specialists. Services include programs for rehabilitation, developmental pediatrics, subacute care, orthopedics, neurology, urology, cerebral palsy, spina bifida, muscular dystrophy, feeding disorders, dental care and more.
804-321-7474
800-828-1120 TDD via VA Relay Center
www.childrenshosp-richmond.org
Children’s Hospital of The King’s Daughters
In addition to comprehensive and specialized care for newborns through teens, offers extensive psychosocial resources, including child life specialists, chaplains, schoolteachers, social workers, and parent and patient education programs. Specialities include but are not limited to: children's cancer and blood disorders, cardiac surgery, children's plastic surgery, child psychology, craniofacial center and services for asthma and allergies.
Norfolk
757-668-7000
www.chkd.org
The Children’s Place at Lake Taylor Hospital
Provides services for children requiring longer-term hospitalization for illnesses or disabilities. Programs include rehabilitation therapies, pulmonary/ventilator care, full rehabilitation therapies, classroom programs for various levels of intellectual function and after school/weekend activities.
Norfolk
757-461-5001
www.laketaylor.com/pediatric-overview
Comprehensive Health Investment Project (CHIP) of Virginia, Inc.
Statewide network of local programs that ensures access to health care for low-income children. Mission is to partner with communities to strengthen families, improve community health and increase family self-sufficiency.
Central Office • Richmond • 804-783-2667
Arlington • 703-228-1284
JEFFERSON AREA • Charlottesville • 434-964-4700 • www.jachip.org
CHESAPEAKE and PORTSMOUTH • 757-543-9100
NEW RIVER VALLEY • Radford • 540-633-2518, ext. 35
Norfolk • 757-683-9244
RICHMOND and PETERSBURG • 804-233-2850 • www.chipofrichmond.org
Roanoke • 540-857-6993 • www.chiprv.org
SOUTHWEST VIRGINIA • Abingdon • 276-623-9000
GREATER WILLIAMSBURG • Norge • 757-566-3300
www.chipofvirginia.org
Department of Medical Assistance Services
Provides a system of quality, comprehensive health services to members of Virginia’s low-income population as part of a safety net.
804-786-7933
800-343-0364 TDD
www.dmas.virginia.gov
DrugWatch.com
A comprehensive online medical database featuring information about thousands of medications currently on the market or previously available worldwide.By providing extensive information about side effects, drug interactions, FDA recalls and drug alerts, DrugWatch.com helps patients and consumers make educated decisions about their medications and treatment options.
DrugWatch.com
Family Access to Medical Insurance Security Plan (FAMIS)
Federal/state program provides low-cost health insurance for children in families that earn too much for FAMIS Plus (Medicaid) but don’t have private health insurance.
866-87FAMIS (866-873-2647)
888-221-1590 TDD
www.famis.org
Fauquier Health Outpatient Rehabilitation Services
Hospital based outpatient clinic providing physical, occupational and speech therapy services to people of all ages.
Warrenton
www.fauquierhealth.org/services-rehab.services-rehab-outpatient
Healthfinder
Developed by the U.S. Department of Health and Human Services together with other Federal agencies. Site links to carefully selected information and websites from over 1,500 health-related organizations.
www.healthfinder.gov
HRSA Federal Health Care Information Center (Health Resources and Services Administration)
Resources, and referrals on health care services for low-income, uninsured individuals and those with special health care needs.
888-Ask HRSA (275-4772)
877-4TY-HRSA TTY
www.ask.hrsa.gov
INOVA Fairfax Hospital for Children
Services provided at the Inova Fairfax Hospital for Children Specialty Center include: International Adoption Center, Craniofacial Program, Pediatric Kidney Center, genetics, Pediatric Heart Care, Pediatric Cancer Care, and the Pediatric Neuroscience Program. Inova Care Connection for Children (see above) includes link to Northern Virginia Parent Resource Directory
www.inova.org/children
KidsHealth
Created by The Nemours Foundation's Center for Children's Health Media, website provides accurate, up-todate, and jargon-free health information about children from before birth through adolescence. Separate pages for kids, teens and parents.
www.kidshealth.org
Medline Plus
Extensive online database of articles and information from medical journals.
www.nlm.nih.gov/medlineplus
National Center for Medical Home Implementation
Mission is to work in cooperation with federal agencies, particularly the Maternal and Child Health Bureau (MCHB), and other partners and stakeholders to ensure that all children and youth, including children with special needs, have access to a medical home. Find Council on Children with Disabilites on this site.
www.medicalhomeinfo.org
University of Virginia Children’s Hospital
Encompasses a pediatric emergency department, a state-of-the-art Newborn Intensive Care Unit, an intensive care unit (PICU), acute care facilities, the Kluge Children’s Rehabilitation Center and an extensive network of primary and specialty care clinicians.
434-924-8315
www.uvachildrenshospital.com
Virginia Association of Free Clinics
Community-based clinics in 60 locations, serving 114 cities and counties and providing health care at little or no charge to low-income, uninsured and underinsured persons through the use of volunteer health care professionals and partnerships with other health providers.
804-340-3434
www.vafreeclinics.org
Virginia Department of Health
Promotes the optimal health and development of Virginia’s children with special health care needs by working in partnership with families, service providers, and communities. Website includes Care Connection for Children Resource directory, which allows search for local and statewide resources on various medical conditions, advocacy and support groups, insurance, community support organizations and public and private agencies providing services for children with special health care needs.
www.vahealth.org/specialchildren
Virginia Dept of Health Child Development Clinics
Provides diagnostic services for children with developmental delays or discrepancies, which may include such conditions as hyperactivity, behavioral disorders, health problems, learning problems and mental retardation. The clinics perform multidisciplinary evaluations, including psychological, educational, medical (pediatrician), and social work components, depending on the needs of the child. Additional consultations and health related services available as needed. Satellite or field clinics may be conducted on a regular or as needed basis. Contact the Child Development Clinic nearest you to determine availability. Most clinics listed serve ages birth through 21 years.
Danville • 434-797-1040
Fredericksburg • 540-891-3151
Gate City • 276-386-3803
Harrisonburg • 540-568-6687
Lynchburg • 434-947-2030
Norfolk • 757-683-8770
Richmond • 804-827-2100
Roanoke • 540-722-3484
Winchester • 540-722-3484
www.vahealth.org/specialchildren/cdsprogram.asp
Legal
Child Birth Injuries
Legal firm that empowers families affected by birth injuries.
800-914-1562
www.childbirthinjuries.com
Consortium for Appropriate Dispute Resolution in Special Education (CADRE)
Works with state and local education and early intervention systems, parent centers, families and educators to improve programs and results for children with disabilities, increasing capacity to effectively resolve special education disputes, thus reducing the use of expensive adversarial processes. Includes literature on dispute resolution in a Special Education annotated bibliography database.
www.directionservice.org/cadre/index.cfm
Council of Parent Attorneys and Advocates, Inc.
Does not provide direct legal representation but ensures the availability and quality of legal and advocacy resources for parents of children with disabilities. Parents who are looking to find a special education attorney or a special education advocate may look up referrals in the COPAA Member Directory.
www.copaa.org
[The] Law Center for Children (“TLC”) at Legal Services of Northern Virginia
See also Education Law Project at Legal Services of Northern Virgina under ADVOCACY AND GENERAL INFORMATION
Provides representation in adoptions by relatives (grandparents, stepparents and others) and other persons who have custody of non-related children, representation in obtaining guardianship of disabled children over 18 and assistance with SSI and other public benefit matters. Applicants must meet income guidelines as well as certain other qualifying factors.
703-778-6800
866-534-5243
www.lsnv.org
National Center on Education, Disability and Juvenile Justice
Examines the overrepresentation of youth with disabilities at-risk for contact with the courts or already involved in the juvenile delinquency system. Provides technical assistance, conducts research, and disseminates resources related to special education and transition services for detained and incarcerated youth with disabilities as well as prevention of school failure and delinquency.
www.edjj.org
U.S. Department of Justice/Americans with Disabilities Act (ADA)
Information about the Americans with Disabilities Act (ADA) in regards to all aspects of life with disabilities.
800-514-0301
800-514-0383 TDD
www.usdoj.gov/crt/ada/adahom1.htm
PublicLegal
A product of the Internet Legal Research Group (ILRG). A categorized index of more than 4000 select web sites as well as thousands of locally stored web pages, legal forms, and downloadable files, this site was established in 1995 to serve as a comprehensive resource of the information available on the Internet concerning law and the legal profession, with an emphasis on the United States of America. Designed for lay persons and legal scholars alike, it is quality controlled to include only the most substantive legal resources online.
www.ilrg.com
Virginia Office for Protection and Advocacy
Protects individuals with mental illness or other disabilities from abuse, neglect, discrimination and other violations of their legal or human rights. Callers with problems targeted in VOPA’s program priorities may also receive free advocacy services and/or free legal representation.
800-552-3962 V/TTY
804-225-2042 V/TTY
www.vopa.state.va.us
Wright’s Law Advocacy and Law Libraries
Based in Virginia, online source of articles, cases, newsletters, and other information about special education law and advocacy. Also presents conferences and trainings.
www.wrightslaw.com
Miscellaneous Groups and Services
American Music Therapy Association
Music therapy interventions can be designed to improve the quality of life for children and adults with disabilities or illnesses.
www.musictherapy.org
Best Buddies Virginia
Provides opportunities for one-to-one friendships and events through the e-Buddies ®program.
703-734-6423
www.bestbuddiesvirginia.org
Online Groups for Kids /Teens
Many of the organizations listed throughout the Resource Section have specific sections and support groups for kids/teens - this is a very small sample.
• Supersibs -
For kids who have siblings who have cancer - www.supersibs.org
• Slate Pals -
Pen pal program for blind Braille-reading students - nfb.org/nopbc-slate-pals
• Children with Diabetes -
Meet other kids with diabetes from all around the world - www.childrenwithdiabetes.com/kids
• Juvenile Diabetes Foundation -
for kids with diabetes and their friends and family - kids.jdrf.org
• Teens with Epilepsy Group -
www.epilepsyfoundation.org/efforums/forum/index.cfm?forumid=1
• Kids as Self Advocates (KASA) - National, grassroots network of youth with disabilities and needs speaking out. Works to spread helpful, positive information among peers to increase knowledge around various issues including: living with disabilities, health care transition issues, school, work, and many more - www.fvkasa.org
Mary’s Family
Provides resources, respite and online support for families with disabilities or who are involved with the National Vaccine Injury Compensation Program (VICP).
www.marysfamily.org
P. Buckley Moss Foundation for Children's Education
Resources for teaching art to children with learning disabilities.
www.mossfoundation.org
Parent to Parent of Virginia
Statewide disability advocacy organization that provides training and technical assistance to families, support groups and service providers.
804-828-0352
ptpofva.com
The Sibling Support Project
National effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns. Mission is accomplished by training local service providers on how to create community-based peer support programs for young siblings; hosting workshops, listservs, and websites for young and adult siblings; and increasing parents' and providers' awareness of siblings' unique, lifelong, and ever-changing concerns through workshops, websites, and written materials.
www.siblingsupport.org
Virginia Art Therapy Association
Affiliated with National Art Therapy Association, organization of professionals dedicated to the belief that the creative process involved in art making is healing and life enhancing.
www.vaarttherapy.org
Virginia Department of Social Services
Provides services that create and maintain a stable environment for Virginia’s children and families; promotes responsible parenting and establishes the infrastructure that allows for the delivery of services at the local level. See website for contact information for local offices.
800-552-3431
804-726-7000
www.dss.state.va.us
Recreation
See also Camps and Recreation information located at the end of the section
Access-Able Travel Source
Information and resources about traveling with a special need, disability magazines, access guides for cities, resorts and attractions, wheelchair or scooter rentals, accessible transportation and more.
access-able.com/graphical_index.html
American Association of Adapted Sports Programs
Works in partnership with education agencies in the U.S. to establish programs, policies, procedures, and regulations in interscholastic adapted sports for students with physical disabilities to enhance educational outcomes.
www.adaptedsports.org
Disabled Sports USA
Established in 1967 by disabled Vietnam veterans to serve the war injured. DS/USA now offers nationwide sports rehabilitation programs to anyone with a permanent disability. Activities include Winter skiing, water sports, summer and winter competitions, fitness and special sports events. Participants include those with visual impairments, amputations, spinal cord injury, dwarfism, multiple sclerosis, head injury, cerebral palsy, and other neuromuscular and orthopedic conditions.
www.dsusa.org
National Center on Accessibility
Promotes access and inclusion for people with disabilities in parks, recreation and tourism. Based at Indiana University and established through a cooperative agreement with the National Park Service, NCA has emerged as a leading authority on access issues unique to park and recreation programs and facilities.
812-856-4422
812-856-4421 TTY
www.ncaonline.org
The National Center on Physical Activity and Disability
Information about adaptive sports, adaptive exercise programs, videos and equipment, and recreational activities.
800-900-8086 V/TTY
www.ncpad.org
www.travelintalk.net
Global network of persons with disabilities who share information on their hometowns and places they have visited. The members provide accurate information on accommodations and services that are often needed by people with disabilities.
www.travelintalk.net
Camps and Recreational Opportunities
This information was gathered from various websites and lists already in existence. Although every effort was made to verify the information in these listings, we urge you to contact the camps directly to discuss the programs, fees, and availability of camperships and sliding fee scales. It’s also extremely useful to visit each facility you are considering for your child. There are certainly programs that we have missed. We encourage you to call your local Parks and Rec Department to see what opportunities are available.
Other Camp Locator Resources
ACA Virginia • www.acavirginiascamps.org
Easter Seals • www.easterseals.com
Kids /Teen Summer Camps • www.allensguide.com
Nichcy Summer Camps for Children with Disabilities • nichcy.org/publications/camps
American Diabetes Association
Summer residential camp for children with diabetes, ages 7-15.
800-342-2383
www.diabetes.org/living-with-diabetes/parents-and-kids/ada-camps/
American Kidney Fund
Enables children with chronic kidney disease to attend summer camp. Provides financial aid for camp tuition, transportation or camping supplies.
800-638-8299
website
Arlington County Dept of Parks, Recreation and Community Resources
Provides specialized recreation services/programs around prevention and intervention to meet identified needs not met through traditional recreation programs.
703-228-4740 • 703-228-4743 TTY
Website
Camp Baker
Chesterfield
Residential and day programs offered by the Richmond ARC for adults and children with moderate to profound mental retardation include swimming, music, hiking, arts, and crafts, horseback riding and canoeing. Camp Baker’s Day Support program operates year round providing services to adults with mental retardation age 21 and older. Additionally, the program offers year-round weekend respite care for families.
804-748-4789
www.richmondarc.org/Home/Learn/Services/CampBaker.aspx
Camp Bruce McCoy
Chesapeake
Offered by the Brain Injury Association of Virginia, this is a one-week camp for adult (over 18) survivors of brain injuries.
804-355-5748
www.biav.net/camp-bruce-mccoy.htm
Camp CHILD
Lynchburg
A summer program of individualized academic reinforcement and instruction for students identified as learning disabled to help bridge the gap between school years. It also provides activities for the overall social, psychological, emotional, and physical development of the child.
434-846-4434
www.campchild.org
Camp Easter Seals UCP
New Castle
Camping activities for people with physical and cognitive disabilities, designed to offer the opportunity to enjoy fun and challenging activities in a supportive and cooperative atmosphere.
800-662-7119
nc.eastersealsucp.com/services/camp-easter-seals-ucp
Camp Explore
Virginia Beach Department of Parks and Recreation Therapeutic Recreation Services
Offers a variety of activities for all ages, including opportunities in community recreation participation, swimming, after school activity, fitness programs, and summer day programs.
website
Camp Special Love
Front Royal
Camp experiences for children 7-17 who are within 3 years of their last cancer-specific treatment (or within 5 years of a bone marrow transplant). Also offers camps for friends and siblings.
540-667-3774
www.speciallove.org
Camp Holiday Trails
Charlottesville
Provides ages 7-17, with special medical needs and/or chronic health problems an opportunity to enjoy the summer camp experience.
434-977-3781
www.campholidaytrails.org
Camp Horizon for Children and Adults with Disabilities
Southeastern Virginia
Provides a day camp program for individuals with developmental disabilities.
757-622-7017
theupcenter.org/how-we-help/disabilities/summer-camp-therapeutic-recreation/
Camp Jordan
Williamsburg Area
Operated in cooperation with the Medical College of Virginia, Children’s Hospital and The West Central Richmond, this is a residential summer camp for kids who have diabetes.
800-566-1496
www.makwoods.org/camp-jordan-overview.html
Camp Kesem at The University of Virginia
Charlottesville
Week-long sleep away camp for children who have or had a parent with cancer that provides a safe, nurturing and fun environment.
434-227-4556
Website
Camps posted on Consortium on Children's Asthma Camps
• Camp Superkids-Winchester - Day Camp for ages 6-8 Overnight Camp for ages 8-12 • www.campsuperkids.com
• Central Virginia Asthma Camp • Midlothian • Day camp for children, ages 6-12 years old. Parent education session is held separately during the children's educational session. • www.centralvirginiaasthma.org
• Roanoke Camp Catch UR Breath • Roanoke • Three-day, day camp with activities, education, and meals provided. Very well supervised by health care professionals with excellent camper/volunteer ratio. • swsouthard@carilionclinic.org
Camps posted on ChildrenwithDiabetes.com
Emphasis is placed on having fun and learning to accept diabetes as part of daily life. Participants learn to interact with others, improve coping skills, and develop independence. Activities include canoeing, arts and crafts, outdoor sports, archery, hiking and more.
www.childrenwithdiabetes.com/camps/d_07_1va.htm
Central Virginia Burn Camp
Charlottesville
Residential summer camp for young burn survivors designed to meet their social, physical, and psychological needs. The camp is free to children between the ages of 7 & 17.
434-263-6566
www.vaburncamp.org
Challenger Baseball
Little League Baseball Inc., baseball/ tee ball program offers youths who have mental and physical disabilities a chance to play in a league. Each player is assigned a "buddy" who stays with them through the entire practice and weekend game. Contact your local little league division.
www.littleleague.org/learn/about/divisions/challenger.htm
Charlottesville Therapeutic Recreation
For individuals, ages 8 and up, with physical and or mental disabilities whose recreational needs cannot be met by regular programs. The goals of the activities are to improve self-esteem, health, social skills, recreation skills, safety skills, and independence while having fun.
434-970-3264
www.charlottesville.org/Index.aspx?page=763
Chesapeake Parks and Recreation
Certified Therapeutic Recreation Specialists are dedicated to maintaining an atmosphere which promotes leisure awareness, social interaction, and personal achievement with the goal that recreation can enhance health, independence and quality of life.
757-962-5828
website
Chesterfield County Parks and Rec Dept
Offers a variety of programs that change from year to year, but usually include activities such as summer day camps, golf, challenge/ropes course, bowling, Special Olympics, therapeutic horseback riding, sign language classes, arts and crafts, and other therapeutic and inclusive recreation programs.
804-751-4134
Website
City of Alexandria Dept of Recreation, Parks and Cultural Activities
Among the programs offered: eight weeks of summer fun for children with physical, cognitive and developmental disabilities. Day Camp activities include swimming, field trips, sports, games and more. Qualified staff members with therapeutic recreation, special education or other related backgrounds, supervise campers.
703-746-4343
Website
Columbia Lighthouse for the Blind Summer Camp
Summer programs for children and youth who are blind or visually impaired which are designed to encourage them to develop new skills and expand their horizons.
202-454-6240
www.clb.org/media-advisory/35-camp-lighthouse-final
Danville, Parks & Recreation Stonewall Therapeutic Recreation Center
Provides opportunities for individuals with disabilities to explore self and community through recreation and leisure activities. The staff strives to address the physical, social, emotional and cognitive needs of participants.
434-799-5199
Website
Eddie’s Club, Inc.
Northern Virginia
Offers supervised, volunteer-operated, recreation program for children and teens, ages 4-21, with any form of disability. October through March.
703-304-2330
www.eddiesclub.org
Fairfax County Community and Recreation/Therapeutic Recreation
Provide opportunities for children and adults with disabilities so they may acquire the skills that enable them to participate in the recreation and leisure programs of their choice. Staff is committed to providing services, education, and resources that meet participants' interests, needs, and abilities. Staff also provides support and advocacy to individuals who wish to participate in general recreation activities.
703-324-5532 • 711 TTY
www.fairfaxcounty.gov/ncs/trs/
George Mason University Helen A. Kellar Institute for Human disAbilities
George Mason University, Fairfax
Compuwrite Camp
Program for students in rising 4 through rising 9th grade, who are experiencing difficulties with the writing process.
703-993-3670
kihd.gmu.edu/compuwrite/
Hanover County Parks and Recreation Youth Summer Programs
Inclusive summer playground program for children with and without disabilities. Individuals needing extra assistance may make arrangements with a Therapeutic Recreation Aid.
804-365-7150
www.co.hanover.va.us/parksrec
Henrico County Therapeutic Recreation
Classes, clubs, field trips, workshops and special events for families of children and adults with developmental disabilities, emotional disabilities and special health care needs.
804-501-5112
www.co.henrico.va.us/rec/at-your-leisure-program/therapeutic-recreation.html
James City County Division of Parks and Recreation
Provides leisure opportunities and recreation programs, which are open and accessible to all citizens in the county regardlessof mental or physical ability.
757-259-3200
www.jccegov.com/recreation/
Jewish Community Center of Northern Virginia Summer Camp
Fairfax
Provides summer programming for children with special needs, including high-functioning autism, Asperger’s syndrome, and ADD/ADHD.
703-323-0880
Website
Loudoun County Parks & Recreation
Provides recreation programs and day camps for children and adults with varying degrees of special needs including:
Adaptive Recreation Summer Camp and VSA arts of Virginia-Loudoun County
703-777-0100
website
Muscular Dystrophy Assoc. Summer Camp
Each camp provides a wide range of activities especially designed for young people who have limited mobility or use wheelchairs. Accessible activities range from outdoor sports such as swimming, boating, baseball, football and horseback riding, to less physically demanding programs like arts and crafts and talent shows.
www.mda.org/clinics/camp
Newport News Therapeutic Recreation
Provides a wide range of recreation programs and leisure opportunities for children and adults who have special needs that may limit their involvement in recreation programs often offered to the general public. All programs are developed and supervised by a nationally Certified Therapeutic Recreation Specialist.
757-926-1400
www.nngov.com/parks-and-recreation/therapeuticrecreation
Norfolk Dept. of Parks Therapeutic Recreation Center
Hampton Roads Area
Programs utilize recreation to help individuals with temporary impairments, health conditions, and disabilities to increase independence, strengthen leisure skills, and enhance personal well being – physically, cognitively, emotionally, and socially in a rehabilitative environment.
757-441-1764
www.norfolk.gov/Facilities.aspx?Page=detail&RID=87
Roanoke Valley Therapeutic Recreation Services
Empowers people with disabilities to gain the knowledge and skills for the development of a quality leisure lifestyle to meet their interests and needs.
540-772-7529 ext 2
Website
Path International (formerly North American Riding for the Handicapped Association, Inc. ( NARHA))
Organization that promotes the benefit of the horse for individuals with physical, emotional and learning disabilities. Call or click to locate a participating riding program near you.
800-369-RIDE (7433)
www.narha.org
Summer Camp Enrichment Program
Virginia Beach
Cerebral Palsy of Virginia provides summer activities such as computer software games, art and crafts projects, daily field trips to museums, bowling and the movies.
757-497-7474
www.cerebralpalsyofvirginia.org
Special Olympics Virginia
Year-round program of sports training and athletic competition for children and adults with intellectual disabilities. Website has listings of local offices/locations.
State Headquarters/ Central Virginia Office
Richmond • 804-346-5544 • 800-932-GOLD (4653)
www.specialolympicsva.com
Sportable
Organization focused on providing recreation and sports opportunities for individuals with physical disabilities in the Richmond area.
www.sportable.org
Therapeutic Adventures
Charlottesville
Committed to providing greater access to adaptive outdoor recreation for persons of all ages who have a disability (physical or developmental), a chronic illness, or other special health needs. With the goal to improve the quality of life of all persons, the integrative approach to adaptive outdoor recreation consists of Adaptive Water Sports, Adaptive Snow Sports, and Adaptive Wilderness Sports.
434-981-5834
www.TherapeuticAdventures.org
Virginia Youth Soccer Association
The Outreach Program (TOPSoccer) under the auspices of United States Youth Soccer (USYS), is designed to enrich the lives of children with mental and/or physical disabilities through the game of soccer. Local programs can be found on website.
www.vysa.com/programs/34617/34707.html
Voices Together Camp
Richmond
Structured, integrated recreational day camp for children and teens with autism.
804-285-6500 ext 8812
www.weinsteinjcc.org/summer-camps/voices-together
Respite
See also Community Service Board information above. Resources listed under Child Care may also be helpful.
Jill’s House
Provides a safe, fun place for children with special needs while giving their parents and caregivers time to rest and recharge. To ensure that parents and caregivers get a real break, typical siblings are welcome as well.
McLean
703-639-5660
jillshouse.org
McLean Bible Church
Offers respite care with a Christian perspective for children with special needs living at home, from infants to young adults, along with their siblings. Activities include music, crafts, movies and games.
703-770-2942
website
National Respite Locator Service
Helps parents, caregivers, and professionals find respite services in their state and local area to match their specific needs.
chtop.org/ARCH/National-Respite-Locator.html
Schools - Includes Residential Facilities. See also Educational Resources information above.
Please contact individual schools for further information including licensing and accreditation details. Many of the facilities listed may also offer summer camps and programs and/or residential services. Generally speaking, the schools listed here accommodate 20 or more students. Only schools located in Virginia are listed here.
For a more complete listing of Virginia facilities please visit www.vaisef.org or Private Special Education Day Schools Directory. This list may also include residential facilities that have schools on site.
Accotink Academy Alternative Learning Center
College preparatory school for students in grades 6 – 12 who have learning disabilities or other problems affecting school performance, and who need multi-sensory and/or innovative teaching strategies to achieve educational goals.
Springfield • 703-644-9072
www.accotinkcenter.com
Accotink Academy Therapeutic Day School
Serves ages 5-21 who are referred for special education accommodations to address learning and/or emotional disabilities. Instruction is individualized and instructional materials and methodology are equated with the learning style and developmental needs of the students.
Springfield, • 703-451-8041
www.accotink.com
Alternative Paths Training School
Educational/vocational program that provides students, ages 6-22 with developmental and other disabilities, with the knowledge and practical skills essential for successful integration into the community.
Alexandria Campus • 703-766-8708
Fredericksburg Campus • 540-373-8760
www.aptschool.org
Aurora School (ARC of Loudoun)
Founded by parents in cooperation with The Arc of Loudoun, serves students, ages 5 - 22 with the disability categories of autism, developmental delay, mental retardation, multiple disabilities, other health impairment, severe disabilities, speech language impairment, and traumatic brain injury. Verbal behavior, academic literacy, reading, social skills, self-management and problem-solving skills are taught via well researched, commercially available scripted curricula, as well as curricula developed in-house by teachers and behavior analysts.
Purcellville • 540-751-1414
www.aurora-school.org
The Barry Robinson Center
Services include residential treatment services, in-home services, therapeutic foster care, emergency foster care, independent living and prevention services. A multidisciplinary team approach is used to serve children and adolescents who are experiencing emotional disturbances and impairment of social, interpersonal and educational functioning.
Norfolk • 800-221-1995 • 757-455-6100
www.barryrobinson.org
Blue Ridge Autism and Achievement Center
Mission is to serve children and families who are faced with unique learning challenges, specifically autism and learning disabilities, in and around the Roanoke Valley.
Roanoke • 540-366-7399
www.blueridgeautismcenter.com
Boys’ Home, Inc.
Residential/educational setting for school-age males providing educational, vocational, socialization services.
Covington • 540-965-7700
www.boyshomeinc.com
Charterhouse School
Affiliated with United Methodist Family Service, provides specialized education services to youth 11-22 years of age who struggle to function in their current school setting in the greater Richmond area.
Richmond • 804-239-1080
www.charterhouseschool.org
Chesapeake Bay Academy
Mission is to educate students, including those with learning and attention disorders, whose potential may only be realized through an individualized academic program and to empower students to transition successfully from the separate lower, middle and upper school divisions to the next most appropriate educational setting.
Virginia Beach • 757-497-6200
www.cba-va.org
Commonwealth Academy
Offers a college prep curriculum for bright to average students in grades 6-12 with learning differences and who will benefit from small classes. Rich in state-of-the-art technology, the program offers individualized accommodations so students can achieve at grade level or higher.
Alexandria • 703-548-6912
www.commonwealthacademy.org
Cumberland Academy
Provides the educational program at Cumberland Hospital for Children and Adolescents. Therapeutic educators continue the positive supports and other cognitive-behavioral program techniques developed by the child’s treatment team.
New Kent • 800-368-3472
cumberlandhospital.com/about-us/our-facility
The Discovery School of Virginia
Serves teenage boys and girls who are experiencing emotional, behavioral, and learning problems. Separate campuses for boys and girls. The schools utilize a group problem solving process and the natural environment to foster a student's overall positive development.
Dillwyn • 434-983-5616
www.discoveryschool.org
Dominion Academy
Serves students in grades K-12 to help them meet their educational potential and therefore better prepare them to become independent and responsible youth.
Richmond • 855-444-9838
dominionyouthservices.com/wp/
The Dominion School
Coeducational, therapeutic day school that provides a structured, individualized psychoeducational environment for students ages 12-22 (grades 7-12) experiencing emotional, learning, and/or behavioral problems that interfere with their educational development.
Springfield • 703-321-9091
www.TheDominionSchool.com
East End Academy
Programs are designed to meet the developmental, academic, social and emotional needs of students in grades K-12 with the primary handicapping condition of serious emotional disabled (SED), in a positive learning environment.
Newport News • 757-247-0039
Norfolk • 757-275-7498
www.eastendacademy.com
Elk Hill
Provides students with an individualized education, vocational training, and a continuum of counseling and therapeutic services.
Charlottesville Day School • Charlottesville • 434-220-7198
Harambee Day Program • Goochland • 804-457-4866
Elk Hill Northside • Richmond • (804) 266-0135
Varina Day Program • Varina • 804-795-7392
Elk Hill Spring Garden • Bremo Bluff • (434) 842-1801
www.elkhill.com/schools.html
The Faison School for Autism
Provides services on-site from early intervention through school age and intensive programming for children and young adults diagnosed with an autism spectrum disorder. In addition, the school offers a variety of consultative services, including home-program support, school consultation, after-care and summer programs and community workshops.
Richmond • 804-612-1947
www.thefaisonschool.org
Gladys H. Oberle School
Serves students ages 11 up to 22 with Serious Emotional Disturbance, Learning Disability, Autism, Intellectual Disability, and Other Health Impairments, who are functioning behind grade level and/or lack the social skills necessary to succeed in the public school setting. ERI also provides workforce training programs for youth up to the age of 22 through the Workforce Investment Act (WIA), as well as training services for adults.
Fredericksburg • 540-372-6710
www.eri-va.com
Grafton School, Inc.
Associated with Grafton Integrated Health Network, provides services for ages 6-21 with autism,
intellectual and cognitive
disabilities, psychiatric conditions,
and developmental disorders.
Winchester • 540-722-9172
Berryville • 540-955-2400
Richmond • 804-674-8888 ph/TDD
www.grafton.org
Graydon Manor
Association with Grafton Integrated Health Network, provides academic instruction for grades 6-12, in conjunction with strong therapeutic support to assist students in successfully addressing their individual educational, social/emotional, and developmental goals, with the ultimate goal of a successful transition back to a public school setting.
Sterling • 703-430-0176
www.graydonmanor.org
HopeTree Academy
Provides a school setting for those in the Residential Care Program whose emotional and/or educational needs require an alternative school in order to succeed. Educational goals are based on an innovative "Self Concept Development Curriculum" and the Virginia Board of Education's Standards of Learning.
Salem • 540-389-5468
hopetreefs.org/childrens-youth-services/hopetree-academy/
Hughes Center
Residential treatment facility and day school in Danville, Va., that serves young men and women diagnosed with an intellectual disability or any Pervasive Developmental Disorder, including Autism Spectrum Disorder and Asperger Syndrome. With the goal of learning how to be successful in their home, school and community.
Danville • 434-836-8500 • 888-54-HUGHES
thehughescenter.com
John G. Wood School at the Virginia Home for Boys and Girls
Day and residential programs with specialized alternative education for students in grades 6-12. The curriculum also allows students to undertake independent study; i.e., GED preparation or online classes for high school credit.
Richmond • 804-270-6566
www.boysandgirlshome.org
Kellar School
Therapeutic education program serving grades 3 - 12, who have been identified as being eligible for special education services. Designed to meet the needs of students with emotional and/or learning disabilities. These students may also have social, behavioral or health-related issues that significantly interfere with their ability to learn.
Fairfax • 703-218-8500
www.inova.org/healthcare-services/inova-kellar-center/kellarschool.jsp
Lafayette School & Treatment Center
Serves children and adolescents (grades K-12) with diagnosis of emotional disturbance, behavioral disturbance, and/or mental illness, in a structured special education and treatment program.
Charlottesville • 434-971-8636
lafayetteschool.org
Leary School, Inc.
Offers a structured academic program, in grades 1- 12, with individualized instruction and remedial education. Serves students with learning disabilities, emotional disturbances, and/or behavioral issues. (Website not available as of this update - Jan, 2013 - takes viewer to other types of listings)
Alexandria • 703-941-8150
www.learyschool.org
Little Keswick School
Therapeutic residential facility serving boys, ages 10-15 at time of admission. Provides a structured environment to give students with emotional and self-regulation issues, language-based and non-verbal learning disabilities, ADHD or Asperger's and similar developmental disorders, opportunities to learn, grow, and thrive.
Keswick • 434-295-0457
www.littlekeswickschool.net
Matthew's Center
Provides children with autism and related disabilities, with the foundation and skills required to function successfully and independently in his/her environment.
Manassas • 703-369-2976
www.MatthewsCenter.org
Metropolitan Day School
Intensive, highly structured day school to meet the needs of students with learning disabilities and emotional disturbances. Students receive individualized instruction in small group settings and have access to a comprehensive array of services, which address their physical, emotional, social and educational needs.
Richmond • 804-321-2595
www.metropolitandayschool.com/day_school.html
Minnick Education Centers
Students are referred to Minnick Education Centers by their home school districts through the local Family Assessment and Planning Teams (FAPT) with the consent of the parents or legal guardians. Students are provided with the opportunity, encouragement, and professional services to meet their educational and emotional needs.
Roanoke • 540-265-4281
Harrisonburg • 540-437-1814
Wytheville • 276-228-8088
Wise • 276-328-7181
www.minnickedc.org
The New Community School
Serves children with specific learning disabilities in grades 6-12. Program includes both remediation of language skills and academic challenge appropriate for students of average to above-average intellectual potential.
Richmond • 804-266-2494
www.tncs.org
New Vistas School
Provides an individualized instructional program for students, grades K-12, with learning and attention differences, as well as the associated emotional difficulties that often accompany these challenges.
Lynchburg • 434-846-0301
www.newvistasschool.org
Northstar Academy
Serves children in grades K–12, with learning differences, who have demonstrated difficulty learning in traditional school settings with traditional teaching methods.
Richmond • 804-747-1003
www.northstaracademy.net
Oakland School
Boarding and day school for children ages 6-14 with learning disabilities including dyslexia, dysgraphia, dyscalculia, non-verbal learning disabilities or visual and auditory processing disorders. The program also is well-suited to those with ADHD or organizational difficulties.
Keswick • 434-293-9059
www.OaklandSchool.net
Oak Valley Center, Inc.
Structured therapeutic day school for students in Grades 3-12, designed to meet the developmental, academic and social needs of children and adolescents with learning or emotional problems that interfere with their abilities to concentrate and to learn.
Fairfax • 703-591-1146
www.oakvalleycenter.com
Oakwood School
Day school that serves elementary and middle school-age students, with mild to moderate learning disabilities who exhibit a discrepancy between their potential and their current level of achievement.
Annandale • 703-941-5788
www.oakwoodschool.com
Paladin Academy
Serving students with language-based challenges such as dyslexia, dysgraphia and attention deficits. Multi-sensory, individualized educational program builds a foundation for life-long success.
Sterling • 703-404-0202
Chantilly • 703-397-0555
www.paladinacademy.org
Phillips Program
A K-12 day school serving children with multiple disabilities, behavioral problems, emotional difficulties, learning disabilities, mental retardation or autism. Client’s county of residence usually makes referrals for this program.
Annandale • 703-941-8810
www.phillipsprograms.org
Pygmalion School
Intensive self-contained, structured and supportive dayprogram of special education for children, grades 1-8, whohave been identified as Emotionally Disturbed and who mayhave a secondary disability of Learning Disabled or Mentally Handicapped/Impaired. Ultimate goal is a successful transition back to public school or other appropriate educational program.
Staunton
540-886-2777
www.peopleplaces.org/pygmalion_school.html
Rivermont Schools
Programs designed for students who cannot participate in regular school programs due to psychological problems, emotional difficulties or learning disabilities, but who do not require inpatient treatment.
Lynchburg • 434-947-4697
Hampton • 757-766-2347
Chase City • 434-372-3303
Roanoke • 540-342-4048
Danville • 434-432-0335
Virginia Beach • 757-497-4703
Covington • 540-965-6388
Lexington • 540-463-6312
www3.centrahealth.com/about/rivermont.aspx
Riverside School, Inc.
Dedicated to providing a teaching approach which is specifically designed to meet the educational needs of students in grades
K-8 with dyslexia and similar language-based differences. Small classes, individualized curriculum, one-on-one instruction, and a nurturing environment.
Richmond
804-320-3465
www.riversideschool.org
Shenandoah Autism Center
Serves children with autism, ages 3-21. Educational programs and behavioral intervention strategies are developed with our BCBA-D consultant to meet the individual needs of each child. In addition, student programs also emphasize a strong focus on communication, socialization, and adaptive living skills.
Clifton Forge
540-862-2327
shenandoahautismcenter.com
Specialized Youth Services of Virginia, Inc.
Provides a continuum of community based services to include in-home counseling, and day treatment services as well as an alternative educational program for identified students, ages 6-18 in grades K-12 who are unable to succeed in programs available within public schools, but who do not require a more restrictive residential program.
BREC (Behavioral Resources for Exceptional Children) Academy • Petersburg
Shenandoah Academy • Harrisonburg
800-215-2180
www.sysva.com
St. Joseph’s Villa
Working with Richmond local school systems and parents, the Villa provides a variety of educational services to children with special needs. Education programs (and the clients they serve) include:
~Dooley School - Program for middle- and high-school students with learning disabilities and behavioral issues.
~Dooley Center for Alternative Education - For students who have been suspended or expelled from their local high school.
~Dooley School at Cherokee Road - An elementary-school program for students with a variety of learning disabilities.
~The Sarah Dooley Center for Autism - Uses systematic instruction based on Applied Behavioral Analysis (ABA)
~Brook Road Academy, a nontraditional, college-prep high school.
800-273-6553 • 804-553-3200
www.stjosephsvilla.net
Timber Ridge School
Residential treatment and accredited educational program serving young men with a history of serious emotional, learning, and behavioral difficulties. School is in session for 12 months each year. In the summer months, students can enroll in educational classes to make up deficiencies from prior years. They may also take classes to meet requirements for fine arts credits and other electives.
Cross Junction • 540-888-3456 • 877-877-3004
www.timber-ridge-school.org
Virginia Institute for Autism - James C. Hormel School
Full-day, 12-month program for ages 2 and up. Program utilizes teaching procedures based on the principles of ABA and makes use of specialized teaching strategies, which address the unique learning characteristics of students with autism. When appropriate, students transition into mainstream classrooms in public and private school settings with a VIA transitional coach.
Charlottesville • 434-923-8252
www.viaschool.org
Service and Therapy Animals
Autism Service Dogs of America
Specializes in placing dogs that are specifically trained to assist individuals with challenges of autism.
www.autismservicedogsofamerica.com
Blue Ridge Assistance Dogs
Organization dedicated to providing specially selected and professionally trained Service Dogs and Social/Therapy Dogs.
703-369-5878
www.blueridgeassistancedogs.org
Canine Companions for Independence
Provides highly trained assistance dogs and ongoing support.
800-572-BARK (2275)
www.cci.org
Caring Canine Companions, Inc.
Verona
540-248-6655
No website
Guiding Eyes for the Blind
Provides training for blind persons who have additional disabilities, such as hearing loss or orthopedic problems.
800-942-0149
www.guidingeyes.org
Guide Horse Foundation
Provides miniature horses as an alternative mobility option for people who are blind. People who have tried Guide Horses report that the horses demonstrate excellent judgment and are not easily distracted by crowds and people.
252-433-4755
www.guidehorse.org
Helping Hands: Monkey Helpers for the Disabled
Places specially trained capuchin monkeys with people who are paralyzed, or who suffer other severe mobility impairments.
617-787-4419
www.monkeyhelpers.org
Katie's Place
Rural community for interaction with animals.
Blue Ridge
540-947-5696
www.katiesplacefarm.org
Leader Dogs for the Blind
Helps the visually impaired enhance their quality of life by providing the means for safe and independent travel.
888-777-5332
248-651-3713 TTY
www.leaderdog.org
Lift Me Up!
Therapeutic riding program
Great Falls
703-759-6221
www.liftmeup.org
Mona's Ark
Animal assisted occupational therapy.
Troutville
540-204-4480
www.monasark.org
National Capital Therapy Dogs, Inc.
Provides training and socialization for participating dog and handler teams to assure patient safety and quality therapy. Also promotes animal-assisted activity and therapy concepts and provides public education and exposure.
301-585-6283
www.nctdinc.org
Path International (formerly North American Riding for the Handicapped Association, Inc. ( NARHA))
Organization that promotes the benefit of the horse for individuals with physical, emotional and learning disabilities. Call or click to locate a participating riding program near you.
800-369-RIDE (7433)
www.narha.org
Saint Francis of Assisi Service Dog Foundation
Trains service dogs to help qualified persons with physical and/or emotional disabilities which substantially alter one or more major life activities.
540-342-3647
www.saintfrancisdogs.org
Service Dogs of Virginia
Raises, trains and places dogs to assist people with disabilities.
434-295-9503
servicedogsva.org/
Simple Changes Therapeutic Riding Center
Lorton703-402-3613
www.simplechanges.org
Transition/Adulthood Includes information on employment and residential options
AbilityOne Program (formerly The Javits-Wagner-O'Day (JWOD) Program)
Creates jobs and training opportunities for people who are blind or who have other severe disabilities, empowering them to lead more productive and independent lives. Its primary means of doing so is by requiring government agencies to purchase selected products and services from nonprofit organizations employing such individuals.
www.AbilityOne.gov
There are nearly 600 Community Rehabilitation Programs with Federal contracts producing under AbilityOne Program. To search for Community Rehabilitation Programs in your area, go to
www.nish.org/npaLocator/default.asp?state=VA
Association for Persons in Supported Employment
Mission is the improvement and expansion of support employment which enables people with disabilities to work and contribute to society.
www.apse.org
The Association on Higher Education and Disability (AHEAD) in Virginia
Statewide organization of professionals committed to full participation in higher education for persons with disabilities. Affiliated with National AHEAD. Site contains a comprehensive list of disability service providers and ADA coordinators at two-year and four-year colleges and universities in Virginia.
www.ahead.org/affiliates/virginia
Career Support Systems
Promotes independence and self-sufficiency by delivering an array of community based employment supports. CSS supports a variety of customers in community-based settings, including people with mild to severe disabilities, people with economic challenges (for example TANF Recipients) and people with medical concerns.
804-261-6788
www.careersupport.net
Centers for Independent Living (A Division of Virginia DRS)
Non-residential places of action and coalition, where persons with disabilities learn empowerment and develop the skills necessary to make lifestyle choices. Centers provide services and advocacy to promote the leadership, independence, and productivity of people with disabilities. Centers work with both individuals and local communities to remove barriers to independence and ensure equality of persons with disabilities. Website contains listing of individual locations
800-552-5019
804-662-7154 V/TTY
800-464-9950 TTY
www.vadrs.org/cbs/cils.htm
Community Systems Inc.
A family of non-profit corporations whose mission is to help persons with disabilities find happiness in their own homes, in their personal relationships, and as contributing members of society.
703-913-3150
www.communitysystems.org
Didlake, Inc.
Service integrates individuals with disabilities into community through a combination of community integration, classroom instruction, therapeutic services, and pre-vocational training.
703-361-4195
866-361-4195
www.didlake.org
ENTRY POINT!
Program of the American Association for the Advancement of Science (AAAS) offering outstanding internship opportunities for students with apparent and non-apparent disabilities in science, engineering, mathematics, computer science, and some fields of business.
202-326-6649
ehrweb.aaas.org/entrypoint
Gladys H. Oberle School
Provides workforce training programs for youth up to the age of 22 through the Workforce Investment Act (WIA), as well as training services for adults.
Fredericksburg • 540-372-6710
www.eri-va.com
HEATH Resource Center
A national clearinghouse that provides information on post-secondary education and related issues for individuals with learning disabilities.
www.heath.gwu.edu
HopeTree Family Services Developmental Disabilities Ministry
Works to create an environment in which adults with developmental disabilities can experience the most complete life possible. In addition to the residential care provided through community-based homes, DDM also provides short-term respite care, residential support services, respite camps, and long-term planning assistance.
Salem
540-389-5468
vbchfs.org
Hope House Foundation
Provides individualized supported living services for and with adults with developmental disabilities in their own homes or apartments.
Norfolk
757-625-6161
www.hope-house.org
The National Center on Secondary Education and Transition
Seeks to increase the capacity of national, state and local agencies and organizations to improve secondary education and transition results for youth with disabilities. See link to the Youthhood.org website, a curriculum-based tool that can help young adults plan for life after high school.
www.ncset.org
The National Collaborative on Workforce and Disability for Youth
Assists state and local workforce development systems to ensure that youth with disabilities are provided full access to high quality services in integrated settings in order to maximize their opportunities for employment and independent living.
877-871-0744
877-871-0665 TTY
www.ncwd-youth.info
St. John’s Community Services
Provides a variety of community-based services for children, youth, adults and seniors with intellectual, developmental and other disabilities.
Annandale • 703-914-2755
Leesburg • 703-779-7684
www.sjcs.org
ServiceSource (Central Fairfax Services now under this organization)
Providing employment and support services to people with disabilities and a valuable labor force to local commercial businesses and government agencies.
Virginia Regional Office - Employment and Rehabilitation Services
Alexandria • 703-461-6000
Virginia Regional Office - Habilitation Services, Central Fairfax
Springfield • 703-354-0900
www.servicesource.org/services-by-state/virginia
SPecially Adapted Resource Clubs (SPARC)
An innovative clubhouse model supporting young adults with life-long physical and/or developmental disabilities. SPARC supports club members as they continue life-skills development with an added component of entrepreneurial projects and enrichment activities such as music and art therapies.
Reston • McLean
Social Security Administration Ticket to Work Program
Serves beneficiaries receiving SSI or SSDI who are age 18 or older and have not reached age 65. The program is completely voluntary, and eligible youth will automatically receive a Ticket in the mail upon reaching age 18 and remaining on SSI or SSDI after their first Continuing Disability Review under adult criteria.
www.socialsecurity.gov/work/
Virginia Association of Community Rehabilitation Programs
Statewide association of organizations providing quality employment, residential, day support, training, and support services for persons with disabilities.
571-339-1305
877-877-2777
www.vaaccses.org
Virginia Department of Aging and Rehabilitative Services (DARS)
Created by merging the former Department of Rehabilitative Services and Department for the Aging. In 2013, the adult services units from Virginia’s Department of Social Services will become part of DARS. DARS’ merger was proposed by Gov. McDonnell and took effect July 1 to provide and advocate for the highest quality of services to help older Virginians and those with disabilities to maximize and secure their employment, independence and full inclusion into society and guide the Commonwealth in preparing for an aging population
804-662-7000
800-552-5019
800-464-9950 TTY
www.vadrs.org
WoodrowWilson Rehabilitation Center
Provides comprehensive medical, assistive technology and vocational rehabilitation services to persons with disabilities to help them gain increased independence and employment.
Fishersville
800-345-9972
800-811-7893 TTY
540-332-7390
www.wwrc.net
Transportation
Includes information on driver education and adapted vehicles.
Access Chesterfield
Provides transportation services for any Chesterfield County resident who is disabled or over age 60, or meets federal income guidelines regarding poverty levels.
804-279-8489
Access Website
Adaptive Driving Alliance (ADA)
Association of vehicle modification dealers who provide van conversions, hand controls, wheelchair lifts, scooter lifts, tie downs, conversion van rentals, paratransit and other adaptive equipment for disabled drivers and passengers.
www.adamobility.com
Angel Flight Mid-Atlantic Air Ambulance
Offers free transportation, up to 900 miles, on small privately owned planes for ambulatory patients in medical and financial need.
800-296-3797
757-318-7149
www.angelflightmidatlantic.org
Association for Driver Rehabilitation Specialists
Supports professionals working in the field of driver education and driver training and transportation equipment modifications for persons with disabilities through education and information dissemination.
866-672-9466
www.driver-ed.org
Disabled Dealer
Mission is to bring people with disabilities complete access to new and pre-owned adaptive equipment such as accessible vans, scooters, wheelchairs, homes, RV's and more.
Local office - Waynesboro
800-420-6470
www.disableddealer.com
Easter Seals Project Action
Internet database on accessibility to persons with disabilities for U.S. public transit systems, private accessible tours and tour companies, accessible airport and other private shuttles, and accessible taxi services. Includes detailed information on services, fares, and how to make a reservation and lists travel agencies specializing in travel arrangements for persons with disabilities. Additional helpful links on website.
800-659-6428
202-347-7385 TDD
www.projectaction.org
ENDependence Center of Northern Virginia
Has a transportation FAQ on its website regarding public transportation options for people with and without disabilities, in the Northern Va area.
www.ecnv.org/FAQs/transportation.html
National Mobility Equipment Dealers Association
Dedicated to providing safe and quality adaptive transportation and mobility for consumers with disabilities.
866-948-8341
www.nmeda.org
National Patient Travel Center
Provides information about all forms of charitable, long-distance medical transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network to ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical transportation.
Headquarters - Virginia Beach
www.PatientTravel.org
United We Ride
Links to accessible transportation resources in individual communities across the state.
www.unitedweride.gov
U.S. Dept of Transportion Hotline For Air Travelers With Disabilities
Provides general information to consumers about the rights of air travelers with disabilities, responds to requests for printed consumer information, and assists air travelers with time-sensitive disability-related issues that need to be addressed in "real time.
800-778-4838
800-455-9880 TTY
airconsumer.ost.dot.gov/hotline.htm
